The Impact of the Birth of a Child With a Rare Abdomino-thoracic Malformation

Qualitative Study of the Impact of the Birth of a Child With a Rare Abdomino-thoracic Malformation on the Parental Adjustment of the First Year

Qualitative study in psychology whose main objective is to propose a grounded theory to report the dynamics of parental adjustment for the period from the announcement of the diagnosis to one year of the child affected by a rare thoracic abdominal congenital malformation, requiring neonatal surgery.

Inclusion Criteria:

• to be the parent of a child aged 12 to 36 months old having undergone neonatal surgery following oesophageal Atresia, congenital diaphragmatic hernia or short bowel syndrome diagnosis.
• to have lived with the child during his first year of life
• to have social security coverage
• to speak french

Exclusion Criteria:

• to be a person not having the capacity to consent or enjoying social protection (tutorship or guardianship);
• to be a person deprived of liberty;
• to be a minor;
• to be pregnant.