MUSic Therapy to Improve Quality Of Life in Sickle Cell Disease (MUSIQOLS)

MUSic Therapy to Improve Quality Of Life in Sickle Cell Disease (MUSIQOLS): A Pilot Study

The purpose of this pilot study is to investigate the effects of a 6-session music therapy protocol on the pain, mood, quality of life, coping skills, and self-efficacy of adult patients with sickle cell disease (SCD) as compared to adult patients with SCD who receive standard care alone. The investigators will also determine the feasibility (delivery, acceptability, and usefulness) of the music therapy intervention for pain management and quality of life.

Inclusion Criteria:

• Subject is 18 years or older
• Subject has a SCD diagnosis
• Subject fits chronic pain criteria in SCD
• Subject has a working email address
• Subject has access to a mobile device with email and internet capabilities
• Subject is able to speak and understand English
• Subject has attended at least 50% of his/her scheduled outpatient visits to the Adult SCD Clinic in the last 12 months

Exclusion Criteria:

• Subject has a significant visual impairment that has not been corrected
• Subject has a significant hearing impairment that has not been corrected
• Subject has a significant cognitive impairment that would prevent subject from participating in the study