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| ID | Type | Description | Link |
|---|---|---|---|
| 2016-A02091-50 | Other Identifier | ID-RCB Number, ANSM |
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default of inclusion
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The primary objective is to evaluate the experience with the information received on the disease by the healthy brothers and sisters of childrens with malignant haemopathy at the Centre Hospitalier Régional et Universitaire of Lille
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| siblings | Other | Brother or sister of a child has malignant haemopathy and follow-up in the pediatric hematology department |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| semi-directive interview | Other | semi-structured interview conducted by a clinical psychologist |
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| Measure | Description | Time Frame |
|---|---|---|
| Level of satisfaction and characteristics of information received about the disease by healthy siblings of children with hematological malignancies | Measure Qualitative Interviews by Grounded theory. The experience with the information received on the disease by the healthy brothers and sisters of childrens with malignant haemopathy. Assessment of the level of satisfaction with the information received. The information will be characterized according to three dimensions: the framework (by whom, with whom, where, when, how) and the content of the information | 1 year |
| Measure | Description | Time Frame |
|---|---|---|
| Explore the representations of the disease in healthy siblings | The representation of the disease is the set of personal beliefs of an individual about the disease. It allows him to make sense of the disease. These data will be analyzed during the semi-structured interview | 1 year |
| Evaluate their information and support needs following the announcement of the disease |
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Inclusion Criteria:
O has malignant haemopathy O follow-up in the pediatric hematology department in Lille, O diagnosed from 6 weeks to 1 year before maintenance of the healthy subject included
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Eva De Berranger, MD | University Hospital, Lille | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hôpital Jeanne de Flandres, CHU | Lille | France |
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information and support needs gathered during the semi-structured interview |
| 1 year |
| Identify the possible psychic and social consequences of the disease in these healthy subjects | to identify during the semi-directive interview the elements informing about the social behavior and the psychic state of the subject included, expressed spontaneously by the subject, directly (in the speech, for example "I am sad") or indirectly (by attitude, for example: crying) | 1 year |