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| Name | Class |
|---|---|
| Canadian Frailty Network | OTHER |
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This study evaluates the use of advance care planning conversation tools with patients attending their family doctor's office. Patients complete tools about their values and wishes, and a health care provider uses a structured discussion tool to talk about the patient's health condition and future wishes. The patient's family member/substitute decision-maker is encouraged to attend and be part of the discussions.
Structured tools are helpful for advance care planning. Tools have been developed to help with advance care planning because it is a process which has multiple steps and people involved. This study will help health care teams in primary care learn to use the tools with frail or older seriously ill patients and will evaluate the perceptions of patients, family members and health care providers, as well as the impact of having the discussions on subsequent health care interactions the patient has.
Patients complete tools about their values and wishes, and a health care provider uses a structured discussion tool to talk about the patient's health condition and future wishes. The patient's family member/substitute decision-maker is encouraged to attend and be part of the discussions.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Advance care planning tools | Experimental | Advance care planning education and structured conversation using tools |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Advance care planning tools | Behavioral | Structured conversations between patients/substitute decision-maker and clinician based on education about advance care planning using locally relevant booklet/website, values clarification tool for patient engagement, clinician use of the Serious Illness Conversation Guide |
| Measure | Description | Time Frame |
|---|---|---|
| Advance care planning engagement | Survey measuring domains of engagement in advance care planning | 12 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Advance care planning engagement-substitute decision maker | survey measuring substitute decision maker domains of engagement in advance care planning | 12 weeks |
| Patient experience | survey of patient experience with intervention |
| Measure | Description | Time Frame |
|---|---|---|
| Clinician experience of intervention | survey of clinician experience using conversation tools | 6 months |
| Clinician confidence having advance care planning conversations | survey of clinician confidence, satisfaction |
Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Michelle Howard, PhD | McMaster University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Sunridge Family Medicine Teaching Centre | Calgary | Alberta | T1Y 5S3 | Canada | ||
| Safa Medical Clinic |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38879532 | Derived | Stevens J, Elston D, Tan A, Barwich D, Carter RZ, Cochrane D, Frenette N, Howard M. Clinicians' experiences implementing an advance care planning pathway in two Canadian provinces: a qualitative study. BMC Prim Care. 2024 Jun 15;25(1):217. doi: 10.1186/s12875-024-02468-4. |
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| ID | Term |
|---|---|
| D002908 | Chronic Disease |
| ID | Term |
|---|---|
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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Single group before-after
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|
| 12 weeks |
| Patient perceived impact on health care | qualitative interviews of patients asking perceived impact of intervention on later health care use | 6-9 months |
| 6 months |
| Langley |
| British Columbia |
| Canada |
| New Westminster Family Practice | Vancouver | British Columbia | V3L 3C2 | Canada |
| Vancouver General Hospital Gordon and Leslie Diamond Health Care Centre | Vancouver | British Columbia | Canada |