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In Paris, France, home hospice care for terminally ill patients is organized by four "palliative care networks". These networks are responsible for information sharing and coordination of all health care professionals working with the patient. Two different systems are in place to ensure continuity of care outside working hours, in such a setting. In the first system, palliative care specialists from the network are reachable over the phone 24/7 by the patient or its caregivers, whenever needed. In the second system, medical information about the patient, regularly updated by the network's medical team, is available to professionals via a secure website, so that in case the patient requires an urgent medical home visit outside working hours, the visiting physician has access to accurate information.
The study's goal is to compare patient's and caregiver's satisfaction between these two systems of continuity of care.
For that purpose, patients will be taken care of as usual by every palliative care network. In every instance where the patient or caregivers have reached out for medical help through the network's continuity of care system, the patient or caregiver will be called 5 days later by the investigation team to go through a satisfaction questionnaire (Likert scales)
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| Measure | Description | Time Frame |
|---|---|---|
| Satisfaction about the response given by the network's continuity of care system | Patient's (or caregiver's) satisfaction about the response given by the network's continuity of care system, after the patient or caregiver activated this system at night time or during week-ends or bank holliday, as measured on a 4-level Likert scale (verbal questionnaire by phone call) | between the first and tenth day after the patient or caregiver activated the network's continuity of care system |
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Inclusion Criteria:
Exclusion Criteria:
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All patients newly followed for home hospice care by the four palliative care networks of Paris, France, during the inclusion period (up to the inclusion of 200 patients)
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| Name | Affiliation | Role |
|---|---|---|
| Herve PICARD, MD MSc | Clinical Research Department, Rothschild Foundation, Paris (France) | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Reseau QUIETUDE | Paris | 75003 | France | |||
| Reseaux ROPE |
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
| D019636 | Neurodegenerative Diseases |
| ID | Term |
|---|---|
| D009422 | Nervous System Diseases |
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| Paris |
| 75012 |
| France |
| Reseau ENSEMBLE | Paris | 75013 | France |
| Reseaux ParisOuest | Paris | 75015 | France |