Management of Health-Related QoL Impairment, Including Pain, Depression and Anxiety, in People With Haemophilia A and B

Management of Health-Related Quality of LIfe Impairment, Including Pain, Depression and Anxiety, in People With Haemophilia A and B

The puropse of this non-interventional register and survey study is to identify the patterns of prescribed pain, anti-depressive and anti-anxiety medication and management of pain, depression and anxiety for people with haemophilia. The study will be conducted in the Nordic countries (Sweden, Norway, Denmark, Finland) and the aim is to cover the entire haemophilia population in the register part of the study.

Inclusion Criteria:

• Part A population will be defined by having:
• at least one health care contact with main diagnosis haemophilia A or haemophilia B, and/or;
• at least one prescription of factor VIII or factor IX concentrates, or;
• bypassing agents used in the treatment of PwH during the inclusion period.
• Part B1 population: Relevant physician at each HTC with direct and frequent patient contact.
• Part B2 population: PwH 5 years or older listed at participating HTCs

Exclusion Criteria:

• NA