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Whereas pruritus is a major symptom in bullous pemphigoid, its characteristics and its impact on quality of life have been little studied.
The objective of this study is to learn more about pruritus characteristics of patients with bullous pemphigoid, and in consequence to better understand the pathophysiology of pruritus, and then to better treat pruritus in this condition.
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| Measure | Description | Time Frame |
|---|---|---|
| Clinical characteristics of pruritus in patients with bullous pemphigoid | Answers and scores in questionnaire about clinical characteristics of pruritus Demographics characteristics of patients Characteristics of the bullous pemphigoid | Day1 ( when diagnosis of bullous pemphigoid is made) |
| Measure | Description | Time Frame |
|---|---|---|
| Impact of pruritus on quality of life in patients with bullous pemphigoid | Score 5D itch scale | Day 1 (when diagnosis of bullous pemphigoid is made ) |
| Impact of pruritus on quality of life in patients with bullous pemphigoid |
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Inclusion Criteria:
Exclusion Criteria:
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All patients with a new diagnosis of bullous pemphigoid
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| CH Argenteuil | Argenteuil | 95100 | France | |||
| AP-HP, Hôpital Avicenne |
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score ItchyQol (Itchy Quality of Life)
| Day1 (when diagnosis of bullous pemphigoid is made ) |
| Impact of pruritus on quality of life in patients with bullous pemphigoid | score ABQOL | Day 1 (when diagnosis of bullous pemphigoid is made ) |
| Bobigny |
| 93009 |
| France |
| CHU de Bordeaux | Bordeaux | 33404 | France |
| CHRU de Brest | Brest | 29609 | France |
| CHU Caen | Caen | 14033 | France |
| CHU de Clermont-Ferrand | Clermont-Ferrand | 63003 | France |
| AP-HP, Hôpital Henri Mondor | Créteil | 94000 | France |
| CHU Le Havre | Le Havre | 76083 | France |
| HP-HM | Marseille | 13385 | France |
| CHU de Montpellier | Montpellier | 34295 | France |
| CH de Niort | Niort | 79021 | France |
| AP-HP, Hôpital Cochin | Paris | 75006 | France |
| AP-HP, Hôpital Bichat | Paris | 75018 | France |
| CHU de Reims | Reims | 51092 | France |
| CHU de Rouen | Rouen | 76031 | France |
| CHU de Saint-Etienne | Saint-Etienne | 42055 | France |
| ID | Term |
|---|---|
| D010391 | Pemphigoid, Bullous |
| D011537 | Pruritus |
| ID | Term |
|---|---|
| D012872 | Skin Diseases, Vesiculobullous |
| D012871 | Skin Diseases |
| D017437 | Skin and Connective Tissue Diseases |
| D001327 | Autoimmune Diseases |
| D007154 | Immune System Diseases |
| D012877 | Skin Manifestations |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |
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