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The investigators are examining how aspects of daily function are perceived in persons with PD and in those who interact with them on a regular basis. If eligible, participants will receive a set of online questionnaires by email. The questionnaires will take about 1 hour to complete, and can be done at the participant's convenience. The investigators are looking for volunteers who have a diagnosis of Parkinson's disease without dementia (age 40 or older and proficient English speakers). If a spouse, family member, significant other or other close associate is available (age 18 or older, proficient English speakers), the investigators will send them questionnaires as well. There is no monetary or other compensation for this study. For more information, please contact the Vision and Cognition Laboratory at vcognition@gmail.com or 617-358-1377.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| People with Parkinson's Disease | Individuals diagnosed with idiopathic Parkinson's disease without dementia. | ||
| Informant | Family member, spouse, significant other, caregiver, or other close associate of someone with Parkinson's disease. |
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| Measure | Description | Time Frame |
|---|---|---|
| Parkinson's Disease Questionnaire (PDQ-39) | Measures the health status of Parkinson's disease patients and the impact the disease has on their aspects of daily living. There are 39 items. | Within 24 hours of starting the study |
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Inclusion Criteria:
Exclusion Criteria:
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Participants are accepted regardless of location, community, clinic, etc.
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| Name | Affiliation | Role |
|---|---|---|
| Alice Cronin-Golomb, Ph.D. | Boston University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Vision and Cognition Laboratory at Boston University | Boston | Massachusetts | 02215 | United States |
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| ID | Term |
|---|---|
| D010300 | Parkinson Disease |
| ID | Term |
|---|---|
| D020734 | Parkinsonian Disorders |
| D001480 | Basal Ganglia Diseases |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
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| D009422 | Nervous System Diseases |
| D009069 | Movement Disorders |
| D000080874 | Synucleinopathies |
| D019636 | Neurodegenerative Diseases |