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| Name | Class |
|---|---|
| World Federation of Hemophilia | OTHER |
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This study aims to make an inventory of the condition and care of patients with haemophilia and carriers for haemophilia in Ivory Coast and to promote the use non substitutive strategies that are not costly and available in Ivory Coast, to improve the management of haemophilia in this country. The purpose of this project is to evaluate the extent to which the active promotion of these various measures will improve the care of patients with haemophilia and carriers in Ivory Coast.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients with Haemophilia | Experimental | Male patients with severe and moderate haemophilia A and B in Ivory Coast |
|
| Carriers for Haemophilia | Experimental | Carriers for severe and moderate haemophilia A and B in Ivory Coast |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Education | Other | Education of patients and caregivers about haemophilia and carriers of haemophilia. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Improve haemophilia care in Ivory Coast | Compare QoL questionnaires before and after the intervention phase | 2 years after intervention |
| Improve haemophilia diagnosis of haemophilia in Ivory Coast | Compare the number of patients with haemophilia between the beginning and the end of the study | 3 years |
| Improve haemophilia care in Ivory Coast | Compare the pain assessment before and after the intervention phase | 2 years after intervention |
| Improve knowledge about haemophilia in Ivory Coast | Compare the knowledge queestionnaires about haemophilia before and after the intervention phase | 2 years after intervention |
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Inclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Catherine M Lambert, MD | Cliniques universitaires Saint-Luc- Université Catholique de Louvain | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| CHU de Yopougon | Abidjan | Côte d’Ivoire |
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monocentric prospective study with longitudinal data collection of a single group
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| Improve biological diagnosis and follow-up of haemophilia | Diagnostic Test | train the laboratory to the diagnosis ans follow-up un haemophilia |
|
| Implement haemostatic non substitutive care of haemophilia | Drug | Implement the use of DDAVP and antifibrinolytics in patients with haemophilia and symptomatic carriers |
|
| Implement non haemostatic care of haemophilia | Other | Implement regular physiotherapy, develop dental care, promote the regular use of pain killers |
|
|
| ID | Term |
|---|---|
| D006467 | Hemophilia A |
| ID | Term |
|---|---|
| D025861 | Blood Coagulation Disorders, Inherited |
| D001778 | Blood Coagulation Disorders |
| D006402 | Hematologic Diseases |
| D006425 | Hemic and Lymphatic Diseases |
| D020147 | Coagulation Protein Disorders |
| D006474 | Hemorrhagic Disorders |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
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| ID | Term |
|---|---|
| D004522 | Educational Status |
| D026741 | Physical Therapy Modalities |
| D003729 | Dental Care |
| D000082 | Acetaminophen |
| ID | Term |
|---|---|
| D012959 | Socioeconomic Factors |
| D011154 | Population Characteristics |
| D013812 | Therapeutics |
| D012046 | Rehabilitation |
| D003813 | Dentistry |
| D003752 | Dental Health Services |
| D006296 | Health Services |
| D005159 | Health Care Facilities Workforce and Services |
| D000083 | Acetanilides |
| D000813 | Anilides |
| D000577 | Amides |
| D009930 | Organic Chemicals |
| D000814 | Aniline Compounds |
| D000588 | Amines |
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