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The aim of this study is to adjust and test an existing internet-based tool for collecting patient-reported outcome measures and to use the internet-based tool in an multidisciplinary follow-up of patients treated for malignant hematological diseases. The patient-reported outcome measurements will be used in describing the patients' health-related quality of life (HRQoL) and to investigate whether the HRQol will increase due to participation in multidisciplinary follow-up.
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| Measure | Description | Time Frame |
|---|---|---|
| Health-Related Quality of Life (HRQoL) - General | Patients will be asked to electronically fill out questionnaires before each consultation. The questionnaire that will be used to measure HRQoL is SF-36. SF-36 is a generic questionnaire which can be used to assess HRQoL in the general public. | HRQoL is assessed every 2, 3, 4 or 6 months, up to 18 months. |
| Health-Related Quality of Life (HRQoL) - Disease specific | Patients will be asked to electronically fill out questionnaires before each consultation. The questionnaire that will be used to measure HRQoL is EORTC C30 QLQ. EORTC C30 QLQ is a disease specific questionnaire which can be used to assess HRQoL in patients diagnosed with cancer | HRQoL is assessed every 2, 3, 4 or 6 months, up to 18 months. |
| Measure | Description | Time Frame |
|---|---|---|
| Symptoms of depression and anxiety | Data on symptoms of depression and anxiety will be collected before and after each consultation using an international validated questionnaire. The questionnaire which will be used is: Hospital Depression and Anxiety Scale (HADS) | Symptoms of depression and anxiety will be assessed every 2, 3, 4 or 6 month, up to 18 months |
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Inclusion Criteria:
Exclusion Criteria:
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Patients treated with chemotherapy for primary hematological disease and patients followed in a Wait & Watch regimen
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Mia Sommer, MHsc | Contact | 0045 9766 0896 | m.sommer@rn.dk |
| Name | Affiliation | Role |
|---|---|---|
| Mia Sommer, MHSc | Aalborg University Hospital | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Aalborg University Hospital, Department of Hematology | Recruiting | Aalborg | 9000 | Denmark |
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| ID | Term |
|---|---|
| D019337 | Hematologic Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D006402 | Hematologic Diseases |
| D006425 | Hemic and Lymphatic Diseases |
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| Symptoms of hematological disease | Data on symptoms of disease will be collected before each consultation using an international validated questionnaire. The questionnaire which will be used is: Myeloproliferative Neoplasm Symptom Assessment Form (MPN-SAF) | Symptoms of disease will be assessed every 2, 3, 4 or 6 month, up to 18 months |