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| Name | Class |
|---|---|
| Anna Freud National Centre for Children and Families | OTHER |
| MindTech Healthcare Technology Co-operative | UNKNOWN |
| Common Room Consulting Ltd | UNKNOWN |
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There is an increasing demand for digital tools to empower young people with mental health difficulties (NHS England, 2015). Digital information, advice and mood tracking tools are increasingly being used to support child mental health. Evidence suggests that young people want to be active participants in their care and involved in decisions about their treatment. However, there is a lack of digital shared decision making tools available to support young people in Child and Adolescent Mental Health Services (CAMHS). This study aims to develop Power Up, a smartphone app to empower young people in CAMHS to make their voice heard and to participate more in decisions around their care.
The project will involve two phases:
The findings will inform the planning of a prospective cluster controlled trial. More broadly this trial will contribute an understanding of the feasibility and acceptability of developing and implementing a shared decision making app into CAMHS.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Control Phase (No Power Up) | No Intervention | 60 young people will receive CAMHS treatment as usual. Measures of empowerment, activation, and symptoms will be completed by participants soon after their referral to the service. The same measures plus shared decision making questionnaires will be administered three months later. | |
| Intervention Phase (Power Up) | Experimental | 60 young people use Power Up alongside CAMHS treatment as usual. Measures of empowerment, activation, and symptoms will be completed by participants soon after their referral to the service. The same measures plus shared decision making questionnaires and a Power Up feedback form will be administered three months later. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Power Up | Device | Smartphone phone app |
|
| Measure | Description | Time Frame |
|---|---|---|
| Shared Decision Making Questionnaire - 9 (SDM Q-9) | This will be completed by young people at time two (three months into therapy). The SDM Q-9 is a nine item patient reported shared decision making questionnaire. | 3 months |
| CollaboRATE | This will be completed by young people at time two (three months into therapy). CollaboRATE is a three item patient reported shared decision making measure. | 3 months |
| Experience of Service Questionnaire (ESQ) | Four items from this questionnaire will be completed by young people at time two (three months into therapy) as a proxy measure of shared decision making. The ESQ is a self-completion questionnaire that assesses children and young people's views of services with respect to accessibility, humanity of care, organisation of care and environment. | 3 months |
| Dyadic OPTION scale | This will be completed by clinicians at time two (three months into therapy). The Dyadic OPTION scale is a 12- item instrument to measure the extent to which patients have been involved in shared decision making from the viewpoint of the clinician. | 3 months |
| Measure | Description | Time Frame |
|---|---|---|
| Patient Activation Measure - Mental Health (PAM - MH) | The PAM - MH will be completed by young people at time one (beginning of therapy) and time two (three months into therapy). The PAM - MH is a patient reported tool for measuring engagement in mental healthcare. | 3 months |
| Strengths and Difficulties questionnaire (SDQ) |
| Measure | Description | Time Frame |
|---|---|---|
| Did Not Attends (DNAs) | Number of young person DNAs will be reported by the clinician. | 3 months |
| Number of sessions attended | The number of sessions attended by the young person will be reported by the clinician. |
Inclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Louise N Chapman | Contact | 020 7443 2205 | louise.chapman@annafreud.org | |
| Julian Edbrooke - Childs | Contact | 020 7443 2275 | julian.edbrooke-childs@annafreud.org |
| Name | Affiliation | Role |
|---|---|---|
| Miranda Wolpert, Professor | UCL & Anaa Freud National Centre for Children and Families | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| East London NHS Foundation Trust | Recruiting | London | E1 5NF | United Kingdom |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 29084708 | Derived | Chapman L, Edbrooke-Childs J, Martin K, Webber H, Craven MP, Hollis C, Deighton J, Law R, Fonagy P, Wolpert M. A Mobile Phone App to Support Young People in Making Shared Decisions in Therapy (Power Up): Study Protocol. JMIR Res Protoc. 2017 Oct 30;6(10):e206. doi: 10.2196/resprot.7694. |
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| UNKNOWN |
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The SDQ will be completed by young people at time one (beginning of therapy) and time two (three months into therapy). The SDQ is a self-report behavioural screening questionnaire for children and adolescents measuring symptoms and functioning. |
| 3 months |
| Youth Efficacy / Empowerment Scale - Mental Health (YES - MH) | The YES -MH will be completed by young people at time one (beginning of therapy) and time two (three months into therapy). The YES - MH assesses youth perceptions of efficacy with respect to managing their own mental health condition ('Self'), managing their own services and supports ('Service'), and using their experience and knowledge to help peers and improve service systems ('System'). | 3 months |
| Client Receipt of Services Inventory (CSRI) - Children's Version. | The CSRI will be completed by parents at time one (beginning of therapy) and time two (three months into therapy). The CSRI provides information on service utilisation, as reported by the main carer of the child in the family. | 3 months |
| 3 months |
| Type of therapy / intervention received | The type of therapy / intervention received by the young person will be reported by the clinician. | 3 months |
| North East London NHS Foundation Trust | Recruiting | London | IG11 7LZ | United Kingdom |
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| The Tavistock and Portman NHS Foundation Trust | Recruiting | London | NW3 5BA | United Kingdom |
|