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Knowledge of the descriptive epidemiology of MIs is very limited. The main objective of this study is to determine the prevalence of inflammatory myopathies in Alsace at the 1st January 2012 with "capture-recapture" design using several independent sources of case identification.
Inflammatory myopathies (MIs) are a group of muscle diseases with a significant heterogeneity, clinical, immunological and prognosis.
The old classifications, still currently used, highlight this heterogeneity. Therefore Troyanov and coll. and Hoogendijk and coll. have each recently proposed a classification based on clinical and serological - and immuno- histological examination.
The pathogenesis and prognosis of MIs is very different depending on the entity in question.
Knowledge of the descriptive epidemiology of MIs is very limited. In fact no epidemiological work using criteria consensual classification is actually started.
We propose an epidemiological study of MIs. The main objective of the study is to determine the prevalence of MIs in Alsace at 1stJanuary 2012 by means of a "capture- recapture" study using several independent sources of case identification. The secondary objectives of the study are:
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| Measure | Description | Time Frame |
|---|---|---|
| Estimate the prevalence of idiopathic inflammatory myopathies in Alsace. | Prevalence of idiopathic inflammatory myopathies in Alsace at 1st January 2012 |
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Inclusion Criteria:
Exclusion Criteria:
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Resident of Alsace region located in North-east France
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| Name | Affiliation | Role |
|---|---|---|
| Jean SIBILIA, MD | University Hospital, Strasbourg, France | Principal Investigator |
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| ID | Term |
|---|---|
| D017285 | Polymyositis |
| ID | Term |
|---|---|
| D009220 | Myositis |
| D009135 | Muscular Diseases |
| D009140 | Musculoskeletal Diseases |
| D009468 | Neuromuscular Diseases |
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| D009422 |
| Nervous System Diseases |