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Currently in the Toulouse University Hospital, the organization of transfusion care for patients requiring regular transfusions is based on reading the biological results received by fax before confirming or disproving a planned hospitalization or program a new hospital if needed.
Remote transmission of laboratory results, replacing fax communication might facilitate the coordination of care that results from these laboratory results and provide a better respect of the Plan Custom Care Transfusion (PPST).
The investigators offer organization of transfusion supportive care for patients with conditions requiring biological monitoring using the techniques of information and communication telemedicine.
Primary objective
- Assess the feasibility of setting up an upload procedure biological results in the treatment of transfusion supportive care.
Secondary objectives
Setting up a Custom Care Plan for patients with conditions requiring a transfusion followed , which in its development provides a transfusion Care Custom Program .
The establishment of an electronic transmission enables the regulation of all hospitalizations throughout the patient care pathway and reinforces the link city / hospital through the receipt of laboratory results and issuing information to the partners of the care network patient. The PPST will be transmitted by secure messaging.
The primary endpoint is the proportion of transfusion episodes where PPST is respected. The proportion of patients whose care meets the PPST for 3 successive transfusion episodes will also be estimated.
The secondary endpoints are:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| telemedicine transmission | Experimental | telemedicine transmission of biological results in the treatment of transfusion supportive care |
|
| without telemedicine transmission | No Intervention | no telemedicine transmission of biological results in treatment in the treatment of transfusion supportive care |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| telemedicine transmission of biological results | Other | telemedicine transmission of biological informations |
|
| Measure | Description | Time Frame |
|---|---|---|
| Proportion of transfusion episodes in the Plan Custom Care Transfusion | The primary endpoint chosen is the proportion of transfusion episodes where the Plan Custom Care Transfusion is respected. The element determining compliance will be: - Transfusion with remote transmission, and transfusion in a service defined in the Plan Custom Care Transfusion and transfusion with achievement of target hemoglobin levels | 12 months |
| Measure | Description | Time Frame |
|---|---|---|
| Quality of life of patients | Assess the evolution of the quality of life of patients ( EORTC- QLQC30 questionnaires and EQ5D ) | 12 months |
| Patients satisfaction | Assess changes in patient satisfaction ( satisfaction survey compared to the overall care , the inclusion of the results, the management procedures ) |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Odile Beyne Rauzy, MD | University Hospital, Toulouse | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| IUCT-O | Toulouse | 31059 | France |
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
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| 12 months |
| Satisfaction of medical team | Assess the evolution of the satisfaction of the medical team at home and in Hospital ( satisfaction surveys ) | 12 months |