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Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patients in France.
In order to better understand the characteristics of rare peritoneal surface malignancies and to evaluate treatment strategies, the RENAPE registry aims at the collection of data from patients presenting with a rare peritoneal surface malignancy in France. Data will be entered prospectively in a specifically designed and secured web database.
All RENAPE's centres and physicians are invited to register patients with a rare peritoneal surface malignancy diagnosis and to participate to the registry. Data will be evaluated within regular time frames, focusing on types of rare peritoneal surface malignancies, treatment modalities and patient outcomes (e.g. survival, recurrence), thereby contributing to the better understanding of these rare cancers.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| pseudomyxoma peritonei | Data from pseudomyxoma peritonei cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease). |
| |
| peritoneal mesothelioma | Data from peritoneal mesothelioma cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease). |
| |
| desmoplastic small round cell tumor | Data from desmoplastic small round cell tumor cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease). |
| |
| psammocarcinoma | Data from primary peritoneal serous carcinoma cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease). |
| |
| primary peritoneal serous carcinoma |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Non interventional | Other | Data collection |
|
| Measure | Description | Time Frame |
|---|---|---|
| Incidence of rare peritoneal surface malignancies | Collect detailed clinical and histological diagnosis for estimating annual incidence rate | year 5 |
| Measure | Description | Time Frame |
|---|---|---|
| Impact of specific treatment strategies | Collect detailed therapeutic strategies (surgical procedure, chemotherapy, etc.) on patients with rare peritoneal surface malignancies | year 5 |
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Inclusion Criteria:
Exclusion Criteria:
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Prospectively or retrospectively diagnosed patients with rare peritoneal surface malignancies.
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| Name | Affiliation | Role |
|---|---|---|
| François-Noël GILLY, Prof | Hospices Civils de Lyon - Centre Hospitalier Lyon Sud - Service de Chirurgie Générale et Digestive - 165 chemin du grand Revoyet, PIERRE-BENITE, FRANCE, 69495 | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Institut de Cancérologie de l'Ouest - Paul Papin | Angers | 49100 | France | |||
| CHU Jean Minjoz |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 28212684 | Derived | Villeneuve L, Passot G, Glehen O, Isaac S, Bibeau F, Rousset P, Gilly FN; RENAPE Network. The RENAPE observational registry: rationale and framework of the rare peritoneal tumors French patient registry. Orphanet J Rare Dis. 2017 Feb 17;12(1):37. doi: 10.1186/s13023-017-0571-y. |
| Label | URL |
|---|---|
| Related Info | View source |
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Data from primary peritoneal serous carcinoma cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease). |
|
| diffuse peritoneal leiomyomatosis | Data from diffuse peritoneal leiomyomatosis cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease). |
|
| appendiceal mucinous neoplasms | Data from appendiceal mucinous neoplasms cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease). |
|
| Besançon |
| 25030 |
| France |
| Institut Bergonié | Bordeaux | 33076 | France |
| Centre François Baclesse | Caen | 14076 | France |
| CHU Estaing | Clermont-Ferrand | 63003 | France |
| Centre Jean Perrin | Clermont-Ferrand | 63011 | France |
| AP-HP Louis MOURIER | Colombes | 92700 | France |
| CHU Bocage | Dijon | 21079 | France |
| CHU A. Michallon | La Tronche | 38700 | France |
| Centre Oscar Lambret | Lille | 59020 | France |
| CHRU Claude Huriez | Lille | 59037 | France |
| Centre Léon Bérard | Lyon | 69008 | France |
| Institut Paoli Calmettes | Marseille | 13273 | France |
| Hôpital La Timône | Marseille | 13385 | France |
| Institut du Cancer Montpellier | Montpellier | 34298 | France |
| CHU Nantes Hôtel-Dieu | Nantes | 44093 | France |
| CHU L'Archet II | Nice | 06200 | France |
| Institut Curie | Paris | 75005 | France |
| AP-HP St Antoine | Paris | 75012 | France |
| AP-HP La Pitié-Salpêtrière | Paris | 75013 | France |
| AP-HP Lariboisière | Paris | 75475 | France |
| AP-HP Hôpîtal Europeen Georges Pompidou | Paris | 75908 | France |
| Hospices Civils de Lyon - Centre Hospitalier Lyon Sud - Service de Chirurgie Générale et Digestive - 165 chemin du grand Revoyet, | Pierre-Bénite | 69495 | France |
| CHU Poitiers | Poitiers | 86021 | France |
| Hôpital Robert Debré | Reims | 51092 | France |
| CHU Charles Nicolle | Rouen | ROUEN | France |
| CHU Nord | Saint-Etienne | 42055 | France |
| Institut Cancérologie de l'Ouest - René Gauducheau | Saint-Herblain | 44805 | France |
| CHRU Hautepierre | Strasbourg | 67098 | France |
| Institut Claudius Regaud | Toulouse | 31052 | France |
| Hôpital Purpan | Toulouse | 31059 | France |
| Institut de Cancérologie de Lorraine | Vandœuvre-lès-Nancy | 54519 | France |
| Institut Gustave Roussy | Villejuif | 94805 | France |
| Related Info | View source |
| Related Info | View source |
| Related Info | View source |
| ID | Term |
|---|---|
| D011553 | Pseudomyxoma Peritonei |
| D058405 | Desmoplastic Small Round Cell Tumor |
| D018284 | Cystadenocarcinoma, Serous |
| ID | Term |
|---|---|
| D002288 | Adenocarcinoma, Mucinous |
| D000230 | Adenocarcinoma |
| D002277 | Carcinoma |
| D009375 | Neoplasms, Glandular and Epithelial |
| D009370 | Neoplasms by Histologic Type |
| D009369 | Neoplasms |
| D018297 | Neoplasms, Cystic, Mucinous, and Serous |
| D012509 | Sarcoma |
| D018204 | Neoplasms, Connective and Soft Tissue |
| D003536 | Cystadenocarcinoma |
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