Not provided
| ID | Type | Description | Link |
|---|---|---|---|
| 14-506 | Other Identifier | Holland Bloorview Research Ethics Board |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| ErinoakKids Centre for Treatment and Development | UNKNOWN |
| McMaster Children's Hospital | OTHER |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
In Canada, between 3.6% and 7.7% of children under 19 years old are thought to have a chronic health condition that results in disability or limits to activity. These young people have difficulty finding jobs, attending school, living independently, and forming relationships with other people. These poorer life outcomes are partly the result of a lack of life skills. Life skills include the ability to solve problems and set goals, which allows youth to deal with the demands of everyday life. Several children's treatment centres in Ontario offer short-term residential immersive life skills (RILS) programs to provide youth with these life skills to help them take on adult roles. RILS programs are very promising in terms of making a long-term difference in youths' lives because they provide a place where youth can learn by doing, working with peers and taking risks in a safe environment. However, we do not yet know how well skills that are learned in RILS programs are kept up as time passes or how well RILS programs support broader skills, such as the ability to make one's own choices.
The proposed research will examine these issues and will ask the following questions:
Youth who are attending RILS programs will be compared with:
Youth will provide data at four time points: before the program starts, immediately after the program finishes, three months after the program is over and 12 months after the program is over.
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Residential Immersive Life Skills group | Active Comparator | Youth will take part in a residential life skills program of between one and three weeks, consisting of formal workshops, peer learning, outings in the community, one-on-one coaching and daily living tasks carried out with peers (e.g. cooking, laundry, grocery shopping). |
|
| Non-residential life skills program | Active Comparator | Youth will take part in programs focusing on increasing specific life skills, but taking place only during the day (i.e. non- residential). |
|
| Deferred RILS applicants | No Intervention | Youth who applied to a Residential Immersive Life Skills program but are deferred to a subsequent year. These youth are included as a comparator group to match the motivation level required to apply to a RILS program. | |
| No life skills program | No Intervention | Youth who did not apply or take part in any group life skills program. These youth provide a diagnosis and age matched comparator group. |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Residential Immersive Life Skills programming | Behavioral |
| ||
| Non-residential life skills programming |
| Measure | Description | Time Frame |
|---|---|---|
| Change in Arc's Self-Determination Scale scores | Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention |
| Measure | Description | Time Frame |
|---|---|---|
| Change in General Self-Efficacy Scale scores | Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Affiliation | Role |
|---|---|---|
| Gillian King, PhD | Holland Bloorview Kids Rehabilitation Hospital | Principal Investigator |
| Amy C McPherson, PhD | Holland Bloorview Kids Rehabilitation Hospital | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Holland Bloorview Kids Rehabilitation Hospital | Toronto | Ontario | M4G 1R8 | Canada |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 27600167 | Derived | McPherson AC, King G, Rudzik A, Kingsnorth S, Gorter JW; Ontario Independence Program Research (OIPR) team. Optimizing life success through residential immersive life skills programs for youth with disabilities: study protocol of a mixed-methods, prospective, comparative cohort study. BMC Pediatr. 2016 Sep 6;16(1):153. doi: 10.1186/s12887-016-0694-7. |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Behavioral |
|