Not provided
| ID | Type | Description | Link |
|---|---|---|---|
| 2014-0071 | Other Grant/Funding Number | The Vardal Foundation |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| Linnaeus University | OTHER |
| The Swedish Research Council | OTHER_GOV |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
The research on ageing during the last couple of decades has increasingly focused on questions regarding the quality of life and life satisfaction of the old people. Yet the research indicates that when it comes to the final stage of life, the end includes unnecessary suffering and the quality of life drops. Palliative care has traditionally been provided successfully to younger persons dying from incurable illnesses while older people dying of multiple morbidities or "old age" has received far less of this type of care. However, sixty percent of all people who died in Sweden in 2010 were at least 80 years old and it is well known that dying among older people often is a prolonged period of suffering. One reason might be that it is more difficult to identify when the final stages of life begins for older persons.
The purpose of this project is to implement and evaluate how a knowledge-based model for palliative care in nursing homes affects the quality of life and the participation in the care process for older persons in nursing homes and their next of kin. A second aim is to explore the staff's implementation process of palliative care and the role of the leadership. The final aim is to investigate which factors (barriers and facilitators) that affect the implementation process of this model.
The project was planned to be conducted using a cross-over design in two counties in south of Sweden based on a feasibility/pilot study that was conducted during fall 2014 co-created palliative care educational intervention through seminars for professionals in nursing homes. Due to a more significant amount of drop-outs compared with expected (and for not receiving the total amount of applied foundation), the plan needed to be revised. The knowledge-based palliative care intervention was conducted as a non-blinded control trial, implemented over a six-month period in 30 nursing homes in two different counties in the south of Sweden (County A and County B). The data collection was made in two sequential periods in each county. First, the intervention was implemented in ten nursing homes in County A (Kronoberg County from April 2015), while ten nursing homes in County B served as a control group. Then, County B implemented the intervention (Skåne county from April 2016), and ten new nursing homes in County A, which had not received the intervention, were chosen as a control group. After the two sequential time periods were data from one intervention and one control group analysed. The selection through voluntary participation resulted in a mixture of both larger and smaller nursing homes in the two counties, as well as both from urban and rural areas.
Every seminar group met once a month and included different professions (unit manager, district nurse, assistant nurse, and other staff i.e. occupational therapist and physiotherapist). There were 5 meetings in each nursing home during a period of 6 months.
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Kronoberg Educational Intervention | Experimental | The educational intervention is provided to ten nursing homes. |
|
| Skåne Control | No Intervention | The control group consists of an equal number of nursing homes. This group receives no intervention. | |
| Skåne Educational Intervention | Experimental | The educational intervention is provided to ten nursing homes. |
|
| Kronoberg Control | No Intervention | The control group consists of an equal number of nursing homes. This group receives no intervention. |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Educational Intervention | Behavioral | The seminar groups will be led by two experienced clinical nurses and researchers from the field of palliative care and geriatric care. The educational material consist of six themes; values in palliative care, symptom relief, dignity and a dignified death, collaborative co-creating care, support to next of kin and dialogue with older persons and next of kin about death and dying. The content of the different themes will have a common core for each nursing home but will be adjusted based on the expressed needs of each nursing home. New themes can be created related to the needs of the unique nursing home. The participants in the seminar groups will reflect together over the content of the developed binder of educational material and will relate it to their own work in order to identify areas suitable for changes and/or development. |
| Measure | Description | Time Frame |
|---|---|---|
| World Health Organization Quality of Life-BREF (WHOQOL-BREF) | World Health Organization Quality of Life-BREF (WHOQOL-BREF) measure quality of life for older persons' at the end of life living in nursing homes. Five-point Likert-scale. Higher values mean better outcomes. Total score Min 26. Max 130. The range for the sub scale Overall Quality of Life; Min 1 Max 5 The range for the sub scale General health; Min 1 Max 5 The range for the sub scale Physical Health; Min 7 Max 35 The range for the sub scale Psychological; Min 6 Max 30 The range for the sub scale Social relationships; Min 3 Max 15 The range for the sub scale Environment; Min 8 Max 40 | 9 months |
| World Health Organization Quality of Life-OLD (WHOQOL-OLD) | World Health Organization Quality of Life-OLD (WHOQOL-OLD) measure quality of life for older persons living in nursing homes. Five point Likert-scale. Higher value means better outcome. Min 24. Max. 120. The range for the all the sub scales are; Min 1 Max 20 | 9 months |
| Person-centred Care Assessment Tool (P-CAT)(Patient Version) | Person-centred Care Assessment Tool (P-CAT) (patient version) measure person-centred care for older persons living in nursing homes. Five point Likert-scale. Higher score means better outcomes. Min 13. Max. 65. The range for the sub scale Extent of personalizing care; Min 8 Max 40 The range for the sub scale Amount of organizational and environmental support; Min 5 Max 25 | 9 months |
| Person-Centred Climate Questionnaire (PCQ Patient Version) | Person-Centred Climate Questionnaire (PCQ patient version) measure person-centred care for older persons living in nursing homes. Six point Likert-scale. Higher score means better outcome. Min 17. Max. 102. The range for the sub scale Safety; Min 10 Max 60 The range for the sub scale Everydayness; Min 4 Max 24 The range for the sub scale Hospitality; Min 3 Max 18 | 9 months |
| Measure | Description | Time Frame |
|---|---|---|
| Person-centred Care Assessment Tool (P-CAT) (Staff Version) | Person-centred Care Assessment Tool (P-CAT)(staff version) measure person-centred care for staff working in nursing homes. Five-point Likert-scale. Higher values mean better outcomes. Min 13. Max 65. The range for the sub scale Extent of personalizing care; Min 8 Max 40 The range for the sub scale Amount of organizational and environmental support; Min 5 Max 25 |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Affiliation | Role |
|---|---|---|
| Gerd Ahlström, PhD | Department of Health Sciences, Lund University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Bryggaren | Alvesta | Kronoberg County | 34230 | Sweden | ||
| Högåsen |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 35854375 | Derived | Persson HA, Ahlstrom G, Ekwall A. Professionals readiness for change to knowledge-based palliative care at nursing homes: a qualitative follow-up study after an educational intervention. BMC Palliat Care. 2022 Jul 20;21(1):132. doi: 10.1186/s12904-022-01018-y. | |
| 35270339 | Derived | Ahlstrom G, Rosen H, Persson EI. Quality of Life among Next of Kin of Frail Older People in Nursing Homes: An Interview Study after an Educational Intervention concerning Palliative Care. Int J Environ Res Public Health. 2022 Feb 24;19(5):2648. doi: 10.3390/ijerph19052648. |
| Label | URL |
|---|---|
| The Swedish national knowledge support document for good palliative care | View source |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| ID | Title | Description |
|---|---|---|
| FG000 | Intervention Group Older People | Older persons: The inclusion criteria for the older persons were ≥ 65 years without dementia and with enough energy to manage a structured interview during up to one hour. |
| FG001 | Control Group Older People |
| Title | Milestones | Reasons Not Completed | |||||
|---|---|---|---|---|---|---|---|
| Overall Study |
|
Not provided
Not provided
Not provided
| Type | Includes Protocol | Includes SAP | Includes ICF | Document Label | Document Date | Document Uploaded Date | Document File Name |
|---|---|---|---|---|---|---|---|
| Prot | Yes | No | No | Study Protocol | Oct 6, 2020 | Oct 6, 2020 |
Not provided
The knowledge-based palliative care intervention was conducted as a non-randomized control trial.
Not provided
Not provided
Not provided
Not provided
|
| Next-of-Kin Participation in Care (NoK-PiC); Psychometric Evaluation |
Next-of-Kin Participation in Care (NoK-PiC) measure participation for next of kin to older persons in nursing homes. The study includes both intervention and control groups. The two scales are 1) Communication and Trust (CaT); and 2) Collaboration in Care (CiC). The scales contains nine items each and items are scored from 0 to 4 (agree not at all (=0); agree to a low degree (=1); agree partly (=2); agree to a high degree (=3); and agree totally (=4). The possible score range from 0 to 36 in each of the two scales, and from 0-72 in the total scale. Higher score means better outcomes. This results are based upon a recently published psychometric evaluation by Westergren et al (2020). |
| 9 months |
| World Health Organization Quality of Life-BREF (WHOQOL-BREF) for Next of Kin | World Health Organization Quality of Life-BREF (WHOQOL-BREF) measure quality of life for next of kin to older persons in nursing homes. Five-point Likert-scale. Higher values mean better outcomes. Min 26. Max 130. he range for the sub scale Overall Quality of Life; Min 1 Max 5 The range for the sub scale General health; Min 1 Max 5 The range for the sub scale Physical Health; Min 7 Max 35 The range for the sub scale Psychological; Min 6 Max 30 The range for the sub scale Social relationships; Min 3 Max 15 The range for the sub scale Environment; Min 8 Max 40 | 9 months |
| 6 months |
| Person-Centred Climate Questionnaire (PCQ-S) | Person-Centred Climate Questionnaire (PCQ-S) measure person-centred care for staff working in nursing homes. Six-point Likert-scale. Higher values mean better outcomes. Min 14. Max 84. The range for the sub scale Safety; Min 5 Max 30 The range for the sub scale Everydayness; Min 5 Max 30 The range for the sub scale Community; Min 4 Max 24 | 6 months |
| Alvesta |
| Kronoberg County |
| 34235 |
| Sweden |
| Älmegården | Älmeboda | Kronoberg County | 360 23 | Sweden |
| Asken | Grimslöv | Kronoberg County | 34032 | Sweden |
| Kvarngården | Ingelstad | Kronoberg County | 360 44 | Sweden |
| Konga Allhus | Konga | Kronoberg County | 362 40 | Sweden |
| Åbrinken | Lagan | Kronoberg County | 34014 | Sweden |
| Ljungberga | Ljungby | Kronoberg County | 34135 | Sweden |
| Ljungsätra | Ljungby | Kronoberg County | 34138 | Sweden |
| Brunnsgården | Ljungby | Kronoberg County | 34183 | Sweden |
| Torsgården | Lönashult | Kronoberg County | 34253 | Sweden |
| Furuliden | Moheda | Kronoberg County | 34260 | Sweden |
| Solängen | Ryd | Kronoberg County | 360 10 | Sweden |
| Örnen | Tingsryd | Kronoberg County | 362 30 | Sweden |
| Äppelgården | Urshult | Kronoberg County | 360 13 | Sweden |
| Birkagården | Vaxjo | Kronoberg County | 352 41 | Sweden |
| Hovslund | Vaxjo | Kronoberg County | 352 44 | Sweden |
| Evelid | Vaxjo | Kronoberg County | 352 64 | Sweden |
| Solhaga | Väckelsång | Kronoberg County | 362 51 | Sweden |
| Björkliden | Vislanda | Kronoberg County | 34250 | Sweden |
| Skogsgläntan | Höör | Skåne County | 24395 | Sweden |
| Åsgården | Kågeröd | Skåne County | 28677 | Sweden |
| Mårtenslund | Lund | Skåne County | 224 60 | Sweden |
| Brunnslyckan | Lund | Skåne County | 22460 | Sweden |
| Norrdala | Lund | Skåne County | 22466 | Sweden |
| Rönnebacken | Osby | Skåne County | 283 42 | Sweden |
| Fästan | Södra Sandby | Skåne County | 24731 | Sweden |
| Solgården | Svalöv | Skåne County | 26834 | Sweden |
| Holmagården | Svedala | Skåne County | 23338 | Sweden |
| Ängslyckan | Teckomatorp | Skåne County | 26872 | Sweden |
| 34837994 | Derived | Bokberg C, Sandberg J. Until death do us part Adult children's perspective of their parents' transition from living at home to moving into a nursing home and the time after death. BMC Geriatr. 2021 Nov 27;21(1):666. doi: 10.1186/s12877-021-02633-9. |
| 34482652 | Derived | Sandgren A, Arnoldsson L, Lagerholm A, Bokberg C. Quality of life among frail older persons (65+ years) in nursing homes: A cross-sectional study. Nurs Open. 2021 May;8(3):1232-1242. doi: 10.1002/nop2.739. Epub 2020 Dec 13. |
| 33493153 | Derived | Westergren A, Ahlstrom G, Persson M, Behm L. Next of kin participation in the care of older persons in nursing homes: A pre-post non-randomised educational evaluation, using within-group and individual person-level comparisons. PLoS One. 2021 Jan 25;16(1):e0244600. doi: 10.1371/journal.pone.0244600. eCollection 2021. |
| 33327960 | Derived | Tjernberg J, Bokberg C. Older persons' thoughts about death and dying and their experiences of care in end-of-life: a qualitative study. BMC Nurs. 2020 Dec 16;19(1):123. doi: 10.1186/s12912-020-00514-x. |
| 32306965 | Derived | Rosen H, Ahlstrom G, Lexen A. Psychometric properties of the WHOQOL-BREF among next of kin to older persons in nursing homes. Health Qual Life Outcomes. 2020 Apr 19;18(1):103. doi: 10.1186/s12955-020-01345-9. |
| 32004352 | Derived | Westergren A, Behm L, Lindhardt T, Persson M, Ahlstrom G. Measuring next of kin's experience of participation in the care of older people in nursing homes. PLoS One. 2020 Jan 31;15(1):e0228379. doi: 10.1371/journal.pone.0228379. eCollection 2020. |
| 31752709 | Derived | Rosen H, Behm L, Wallerstedt B, Ahlstrom G. Being the next of kin of an older person living in a nursing home: an interview study about quality of life. BMC Geriatr. 2019 Nov 21;19(1):324. doi: 10.1186/s12877-019-1343-4. |
| 31414348 | Derived | Bokberg C, Behm L, Ahlstrom G. Next of kin's quality of life before and after implementation of a knowledge-based palliative care intervention in nursing homes. Qual Life Res. 2019 Dec;28(12):3293-3301. doi: 10.1007/s11136-019-02268-9. Epub 2019 Aug 14. |
| 31151438 | Derived | Bokberg C, Behm L, Wallerstedt B, Ahlstrom G. Evaluation of person-centeredness in nursing homes after a palliative care intervention: pre- and post-test experimental design. BMC Palliat Care. 2019 May 31;18(1):44. doi: 10.1186/s12904-019-0431-8. |
| 29566688 | Derived | Ahlstrom G, Nilsen P, Benzein E, Behm L, Wallerstedt B, Persson M, Sandgren A. Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol. BMC Palliat Care. 2018 Mar 22;17(1):52. doi: 10.1186/s12904-018-0308-2. |
Older persons: The inclusion criteria for the older persons were ≥ 65 years without dementia and with enough energy to manage a structured interview during up to one hour. |
| FG002 | Intervention Group Next-of-Kin | The next of kin: The inclusion criterion was someone who had a relation to one of the older persons living at the participating nursing homes but not necessarily family members or relatives. |
| FG003 | Control Group Next-of-kin | The next of kin: The inclusion criterion was someone who had a relation to one of the older persons living at the participating nursing homes but not necessarily family members or relatives. |
| FG004 | Intervention Group Staff | Staff: The inclusion criterion was staff at nursing homes (commonly assistant nurses, nurses, occupational therapists and physiotherapists). |
| FG005 | Control Group Staff | Staff: The inclusion criterion was staff at nursing homes (commonly assistant nurses, nurses, occupational therapists and physiotherapists). |
| FG006 | Intervention Group Managers | Managers: Managers at different levels with responsibility for the care and social service at the included nursing homes. |
| FG007 | Intervention Focus Groups | The focus groups took place at the intervention nursing homes and included 48 staff divided into six groups. |
| COMPLETED |
|
| NOT COMPLETED |
|
|
Not provided
| ID | Title | Description |
|---|---|---|
| BG000 | Intervention Group Older People | Older persons: The inclusion criteria for the older persons were ≥ 65 years without dementia and with enough energy to manage a structured interview during up to one hour. |
| BG001 | Control Group Older People | Older persons: The inclusion criteria for the older persons were ≥ 65 years without dementia and with enough energy to manage a structured interview during up to one hour. |
| BG002 | Intervention Group Next-of-Kin | The next of kin: The inclusion criterion was someone who had a relation to one of the older persons living at the participating nursing homes but not necessarily family members or relatives. |
| BG003 | Control Group Next-of-kin | The next of kin: The inclusion criterion was someone who had a relation to one of the older persons living at the participating nursing homes but not necessarily family members or relatives. |
| BG004 | Intervention Group Staff | Staff: The inclusion criterion was staff at nursing homes (commonly assistant nurses, nurses, occupational therapists and physiotherapists). |
| BG005 | Control Group Staff | Staff: The inclusion criterion was staff at nursing homes (commonly assistant nurses, nurses, occupational therapists and physiotherapists). |
| BG006 | Intervention Group Managers | Managers: Managers at different levels with responsibility for the care and social service at the included nursing homes. |
| BG007 | Intervention Focus Groups Staff | The focus groups took place at the intervention nursing homes and included 40 staff divided into six groups. |
| BG008 | Total | Total of all reporting groups |
| Units | Counts |
|---|---|
| Participants |
|
| Title | Description | Population Description | Parameter Type | Dispersion Type | Unit of Measure | Calculate Percentage | Denominator Units Selected | Denominators | Classes | |||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Age, Customized | Mean | Full Range | years |
| ||||||||||
| Sex: Female, Male | Age was not given by all participants. | Count of Participants | Participants |
| ||||||||||
| Race and Ethnicity Not Collected | Race and Ethnicity were not collected from any participant. | Count of Participants | Participants |
|
| Type | Title | Description | Population Description | Reporting Status | Anticipated Posting Date | Parameter Type | Dispersion Type | Unit of Measure | Calculate Percentage | Time Frame | Units Analyzed | Denominator Units Selected | Arm/Group Information | Denominators | Classes | Analyses | ||||||||||||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Primary | World Health Organization Quality of Life-BREF (WHOQOL-BREF) | World Health Organization Quality of Life-BREF (WHOQOL-BREF) measure quality of life for older persons' at the end of life living in nursing homes. Five-point Likert-scale. Higher values mean better outcomes. Total score Min 26. Max 130. The range for the sub scale Overall Quality of Life; Min 1 Max 5 The range for the sub scale General health; Min 1 Max 5 The range for the sub scale Physical Health; Min 7 Max 35 The range for the sub scale Psychological; Min 6 Max 30 The range for the sub scale Social relationships; Min 3 Max 15 The range for the sub scale Environment; Min 8 Max 40 | The inclusion criteria for the older persons were that they were 65 years or older, spoke Swedish, did not have dementia and had enough energy to participate in a structured interview for up to one hour. | Posted | Mean | Inter-Quartile Range | score on a scale | 9 months |
|
|
| |||||||||||||||||||||||||||||||||||
| Primary | World Health Organization Quality of Life-OLD (WHOQOL-OLD) | World Health Organization Quality of Life-OLD (WHOQOL-OLD) measure quality of life for older persons living in nursing homes. Five point Likert-scale. Higher value means better outcome. Min 24. Max. 120. The range for the all the sub scales are; Min 1 Max 20 | The inclusion criteria for the older persons were that they were 65 years or older, spoke Swedish, did not have dementia and had enough energy to participate in a structured interview for up to one hour. | Posted | Median | Inter-Quartile Range | score on a scale | 9 months |
|
| ||||||||||||||||||||||||||||||||||||
| Primary | Person-centred Care Assessment Tool (P-CAT)(Patient Version) | Person-centred Care Assessment Tool (P-CAT) (patient version) measure person-centred care for older persons living in nursing homes. Five point Likert-scale. Higher score means better outcomes. Min 13. Max. 65. The range for the sub scale Extent of personalizing care; Min 8 Max 40 The range for the sub scale Amount of organizational and environmental support; Min 5 Max 25 | In total, 90 older persons, (65 years or older) were included in the study based on the inclusion criteria of being Swedish speaking, not having dementia and with enough energy to manage a structured interview lasting up to one hour. | Posted | Median | Inter-Quartile Range | score on a scale | 9 months |
|
| ||||||||||||||||||||||||||||||||||||
| Primary | Person-Centred Climate Questionnaire (PCQ Patient Version) | Person-Centred Climate Questionnaire (PCQ patient version) measure person-centred care for older persons living in nursing homes. Six point Likert-scale. Higher score means better outcome. Min 17. Max. 102. The range for the sub scale Safety; Min 10 Max 60 The range for the sub scale Everydayness; Min 4 Max 24 The range for the sub scale Hospitality; Min 3 Max 18 | In total, 90 older persons, (65 years or older) were included in the study based on the inclusion criteria of being Swedish speaking, not having dementia and with enough energy to manage a structured interview lasting up to one hour. | Posted | Median | Inter-Quartile Range | score on a scale | 9 months |
|
| ||||||||||||||||||||||||||||||||||||
| Primary | Next-of-Kin Participation in Care (NoK-PiC); Psychometric Evaluation | Next-of-Kin Participation in Care (NoK-PiC) measure participation for next of kin to older persons in nursing homes. The study includes both intervention and control groups. The two scales are 1) Communication and Trust (CaT); and 2) Collaboration in Care (CiC). The scales contains nine items each and items are scored from 0 to 4 (agree not at all (=0); agree to a low degree (=1); agree partly (=2); agree to a high degree (=3); and agree totally (=4). The possible score range from 0 to 36 in each of the two scales, and from 0-72 in the total scale. Higher score means better outcomes. This results are based upon a recently published psychometric evaluation by Westergren et al (2020). | The inclusion criterion was someone who had a relation to one of the older persons living at the participating nursing homes but not necessarily family members or relatives. | Posted | Mean | Standard Deviation | score on a scale | 9 months |
| |||||||||||||||||||||||||||||||||||||
| Primary | World Health Organization Quality of Life-BREF (WHOQOL-BREF) for Next of Kin | World Health Organization Quality of Life-BREF (WHOQOL-BREF) measure quality of life for next of kin to older persons in nursing homes. Five-point Likert-scale. Higher values mean better outcomes. Min 26. Max 130. he range for the sub scale Overall Quality of Life; Min 1 Max 5 The range for the sub scale General health; Min 1 Max 5 The range for the sub scale Physical Health; Min 7 Max 35 The range for the sub scale Psychological; Min 6 Max 30 The range for the sub scale Social relationships; Min 3 Max 15 The range for the sub scale Environment; Min 8 Max 40 | The inclusion criteria were a next of kin who had a relation to an older person living in one of the participating nursing homes but was not necessarily a family member or a relative [14]. The next of kin were recruited consecutively in equal numbers from both the intervention nursing homes and the control nursing homes. | Posted | Median | Inter-Quartile Range | score on a scale | 9 months |
| |||||||||||||||||||||||||||||||||||||
| Secondary | Person-centred Care Assessment Tool (P-CAT) (Staff Version) | Person-centred Care Assessment Tool (P-CAT)(staff version) measure person-centred care for staff working in nursing homes. Five-point Likert-scale. Higher values mean better outcomes. Min 13. Max 65. The range for the sub scale Extent of personalizing care; Min 8 Max 40 The range for the sub scale Amount of organizational and environmental support; Min 5 Max 25 | The informants in this study, the staff, were recruited consecutively in equal numbers from both the intervention nursing homes and the control nursing homes. | Posted | Median | Inter-Quartile Range | score on a scale | 6 months |
|
| ||||||||||||||||||||||||||||||||||||
| Secondary | Person-Centred Climate Questionnaire (PCQ-S) | Person-Centred Climate Questionnaire (PCQ-S) measure person-centred care for staff working in nursing homes. Six-point Likert-scale. Higher values mean better outcomes. Min 14. Max 84. The range for the sub scale Safety; Min 5 Max 30 The range for the sub scale Everydayness; Min 5 Max 30 The range for the sub scale Community; Min 4 Max 24 | The informants in this study, the staff, were recruited consecutively in equal numbers from both the intervention nursing homes and the control nursing homes. | Posted | Median | Inter-Quartile Range | score on a scale | 6 months |
|
|
Data were collected at baseline and three months after the intervention was completed i.e nine months after baseline. Phase one data collection began 25th April 2015 and ended 31st March 2016. Phase two data collection began 23th August 2016 and ended 17th June 2017. After the main data collection period, there were a few (3) interviews missing with managers which were conducted until 15 October 2017.
Due to major drop-outs among older people (death) and staff (limited time) the cross-over design was not possible to fulfilled as planned from the start of the project (see more details in the study protocol).
Not provided
| ID | Title | Description | Deaths (Affected) | Deaths (At Risk) | Serious Events (Affected) | Serious Events (At Risk) | Other Events (Affected) | Other Events (At Risk) |
|---|---|---|---|---|---|---|---|---|
| EG000 | Intervention Group Older People | Older persons: The inclusion criteria for the older persons were ≥ 65 years without dementia, speaking Swedish and with enough energy to manage a structured interview during up to one hour. | 20 | 42 | 20 | 42 | 0 | 42 |
| EG001 | Control Group Older People | Older persons: The inclusion criteria for the older persons were ≥ 65 years without dementia, speaking Swedish and with enough energy to manage a structured interview during up to one hour. | 19 | 40 | 19 | 40 | 0 | 40 |
| EG002 | Intervention Group Next of Kin | The inclusion criterion was someone who had a relation to one of the older persons living at the participating nursing homes but not necessarily family members or relatives. | 0 | 152 | 0 | 152 | 62 | 152 |
| EG003 | Control Group Next of Kin | The inclusion criterion was someone who had a relation to one of the older persons living at the participating nursing homes but not necessarily family members or relatives. | 0 | 156 | 0 | 156 | 51 | 156 |
| EG004 | Intervention Group Staff | The inclusion criterion was staff at nursing homes (commonly assistant nurses, nurses, occupational therapists and physiotherapists). | 1 | 363 | 1 | 363 | 195 | 363 |
| EG005 | Control Group Staff | The inclusion criterion was staff at nursing homes (commonly assistant nurses, nurses, occupational therapists and physiotherapists). | 0 | 330 | 0 | 330 | 132 | 330 |
| EG006 | Intervention Group Managers | Managers at different levels with responsibility for the care and social service at the included nursing homes | 0 | 20 | 0 | 20 | 0 | 20 |
| EG007 | Intervention Focus Groups Staff | The focus groups took place at the intervention nursing homes and included 40 staff divided into six groups. | 0 | 48 | 0 | 48 | 0 | 48 |
| Term | Organ System | Source Vocabulary | Assessment Type | Notes | Statistical Information |
|---|---|---|---|---|---|
| Death | General disorders | Death | Non-systematic Assessment | Frailty and old age (not related to the intervention) |
|
| Term | Organ System | Source Vocabulary | Assessment Type | Notes | Statistical Information |
|---|---|---|---|---|---|
| Other | Social circumstances | Missing data | Non-systematic Assessment |
|
Not provided
Not provided
| Title | Organization | Phone | Extension | |
|---|---|---|---|---|
| Professor Gerd Ahlström | Department of Health Sciences, Lund University | +46702747767 | gerd.ahlstrom@med.lu.se |
| Prot_002.pdf |
| SAP | No | Yes | No | Statistical Analysis Plan | Oct 6, 2020 | Oct 6, 2020 | SAP_003.pdf |
| ID | Term |
|---|---|
| D018479 | Early Intervention, Educational |
| ID | Term |
|---|---|
| D002662 | Child Health Services |
| D003153 | Community Health Services |
| D006296 | Health Services |
| D005159 | Health Care Facilities Workforce and Services |
| D011314 | Preventive Health Services |
Not provided
Not provided
|
|
|
| General health |
|
| Physical Health |
|
| Psychological |
|
| Social relationships |
|
| Environment |
|
|
| Participants |
|
|
| Participants |
|
|
|
|
|
|
|
|