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This study will determine the feasibility of using an end-of-life conversation game (called "My Gift of Grace") as a community engagement activity series to help caregivers, patients with chronic illness, and/or their families perform advance care planning.
While many patients and caregivers of individuals with chronic illness recognize the importance of advance care planning, many feel uncomfortable initiating end-of-life conversations with loved ones. Few tools exist that effectively engage caregivers and address their particular concerns and needs. The investigators have preliminary data showing that an easily implementable intervention (a conversation game) effectively engages healthy participants in realistic and satisfying ACP conversations. However, the investigators have not yet tested the acceptability or feasibility of using the game in a population of caregivers and/or patients with chronic illness. This pilot project will enable us to engage community-based patients and caregivers to determine if they find the game a satisfying, acceptable, relevant, and effective tool for advance care planning.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patient Only | Experimental | Individuals who meet the following criteria will play "My Gift of Grace," a conversation game. Eligibility Criteria for Patient Only Groups:
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| Caregiver Only | Experimental | Individuals who meet the following criteria will play "My Gift of Grace," a conversation game. Eligibility Criteria for Caregiver Only Groups:
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| Surrogate Decision Maker with Patient | Experimental | Individuals who meet the following criteria will play "My Gift of Grace," a conversation game. Eligibility Criteria for Surrogate Decision Maker and Patient Group:
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Conversation Game | Behavioral | The game consists of 47 question cards that prompt players to identify and articulate their values and beliefs related to dying and end-of-life issues; 20 questions have been selected for this study |
| Measure | Description | Time Frame |
|---|---|---|
| Change in self-efficacy and readiness to perform advance care planning behaviors | 55-item survey, likert scale ratings | Baseline (before study session) and 12 weeks post-study |
| Measure | Description | Time Frame |
|---|---|---|
| Experiences and perceptions of intervention | Focus-group, open-ended qualitative questions | 10 minutes after intervention ends |
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Inclusion Criteria:
Participants are eligible to participate if they fall into at least one of the following three groups:
CAREGIVER criteria include:
PATIENT criteria include:
SURROGATE DECISION MAKERS FOR PATIENTS WITH CHRONIC ILLNESS criteria include:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Lauren Van Scoy, MD | Penn State Hershey College of Medicine | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Penn State Hershey College of Medicine | Hershey | Pennsylvania | 17011 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 28743662 | Result | Van Scoy LJ, Reading JM, Hopkins M, Smith B, Dillon J, Green MJ, Levi BH. Community Game Day: Using an End-of-Life Conversation Game to Encourage Advance Care Planning. J Pain Symptom Manage. 2017 Nov;54(5):680-691. doi: 10.1016/j.jpainsymman.2017.07.034. Epub 2017 Jul 23. |
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| ID | Term |
|---|---|
| D002908 | Chronic Disease |
| ID | Term |
|---|---|
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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