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| Name | Class |
|---|---|
| Capnetz Stiftung | OTHER |
| German Center for Lung Research | OTHER |
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The purpose of this study is to study the epidemiology of non-CF bronchiectasis (NCFB) and to provide an estimate of the distribution (prevalence) of NCFB etiologies across all different levels of health care as well as real-life data regarding the current management of NCFB in Germany.
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| Measure | Description | Time Frame |
|---|---|---|
| Number of participants with non-CF bronchiectasis (NCFB) across all different levels of health care regarding the current management of NCFB in Germany | To establish a national, representative, prospective, observational and longitudinal NCFB database and collaborative research network with a database including a minimum of 750 patients from a minimum of 25 centers from all levels of healthcare across Germany after a period of 3 years. | three years |
| Measure | Description | Time Frame |
|---|---|---|
| Prevalence of non-CF bronchiectasis (NCFB) etiologies (composite outcome measures) across all different levels of health care |
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Inclusion Criteria:
Exclusion Criteria:
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Patients with non-CF bronchiectasis
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Grit Barten | Contact | +49 511 5324434 | prognosis@capnetz.de |
| Name | Affiliation | Role |
|---|---|---|
| Jessica Rademacher | CAPNETZ STIFTUNG; Medizinische Hochschule Hannover | Study Chair |
| Felix C. Ringshausen | CAPNETZ STIFTUNG; Medizinische Hochschule Hannover | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Helios Klinikum Emil von Behring - Lungenklinik Heckeshorn | Not yet recruiting | Berlin | Germany | |||
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38880279 | Derived | Ewen R, Pink I, Sutharsan S, Aries SP, Grunewaldt A, Shoemark A, Sommerwerck U, Staar BO, Wege S, Mertsch P, Rademacher J, Ringshausen FC; PROGNOSIS Study Group. Primary Ciliary Dyskinesia in Adult Bronchiectasis: Data from the German Bronchiectasis Registry PROGNOSIS. Chest. 2024 Nov;166(5):938-950. doi: 10.1016/j.chest.2024.05.023. Epub 2024 Jun 15. |
| Label | URL |
|---|---|
| PROGNOSIS - das deutsche Bronchiektasen-Register | View source |
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| ID | Term |
|---|---|
| D001987 | Bronchiectasis |
| D012816 | Signs and Symptoms |
| D004194 | Disease |
| ID | Term |
|---|---|
| D001982 | Bronchial Diseases |
| D012140 | Respiratory Tract Diseases |
| D013568 | Pathological Conditions, Signs and Symptoms |
| D010335 | Pathologic Processes |
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| three years |
| Andrés de Roux |
| Pneumologische Praxis Berlin |
| Study Chair |
| Augusta-Kranken-Anstalt Bochum -Klinik für Pneumologie, Beatmungsmedizin und Infektiologie |
| Not yet recruiting |
| Bochum |
| Germany |
| Fachkrankenhaus Coswig | Not yet recruiting | Coswig | Germany |
| Klinik Donaustauf - Zentrum für Pneumologie | Not yet recruiting | Donaustauf | Germany |
| Klinikum Dortmund Medizinische Klinik Nord - Pneumologie, Infektiologie und Internistische Intensivmedizin | Not yet recruiting | Dortmund | Germany |
| Universitätsklinikum Carl Gustav Carus an der TU Dresden Medizinische Klinik und Poliklinik I, Bereich Pulmologie | Not yet recruiting | Dresden | Germany |
| Florence-Nightingale-Krankenhaus Klinik für Pneumologie, Allergologie, Schlaf- und Beatmungsmedizin | Not yet recruiting | Düsseldorf | Germany |
| Praxis am Maingau Krankenhaus Gemeinschaftspraxis für Innere Medizin, Lungen- und Bronchialheilkunde, Allergologie | Not yet recruiting | Frankfurt | Germany |
| Universitätsklinikum Freiburg Abteilung für Klinische Infektiologie | Not yet recruiting | Freiburg im Breisgau | Germany |
| UKGM - Standort Gießen Medizinische Klinik und Poliklinik II | Not yet recruiting | Giessen | Germany |
| LungenClinic Großhansdorf | Not yet recruiting | Großhansdorf | Germany |
| Medizinische Hochschule Hannover-Klinik für Pneumologie | Recruiting | Hanover | Germany |
| Universitätsklinikum Heidelberg und Thoraxklinik Heidelberg | Not yet recruiting | Heidelberg | Germany |
| Universitätsklinikum Jena Zentrum für Infektionsmedizin und Krankenhaushygiene | Not yet recruiting | Jena | Germany |
| Universitätsklinikum Schleswig-Holstein Medizinische Klinik III - Pneumologie / Infektiologie | Not yet recruiting | Lübeck | Germany |
| Klinikum Lüdenscheid Klinik für Pneumologie, Infektiologie, Schlafmedizin und Internistische Intensivmedizin | Not yet recruiting | Lüdenscheid | Germany |
| Klinikum der Philipps-University Marburg | Not yet recruiting | Marburg | Germany |
| Klinikum der Ludwig-Maximilians-Universität München | Not yet recruiting | München | Germany |
| Diakoniekrankenhaus Rotenburg Zentrum für Pneumologie | Not yet recruiting | Rotenburg (Wümme) | Germany |