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In this study the investigators will use semi-structured interviews to qualitatively analyse patient and family member experiences with either deep brain stimulation or other forms of psychiatric neurosurgery.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Deep Brain Stimulation Patients | Patients who have previously been treated with a deep brain stimulation procedure for obsessive compulsive disorder will be included in this group |
| |
| Deep Brain Stimulation Family Members | Family members of patients who have previously been treated with a deep brain stimulation procedure for obsessive compulsive disorder will be included in this group | ||
| Anterior Capsulotomy Patients | Patients who have previously been treated with an anterior capsulotomy procedure for obsessive compulsive disorder will be included in this group |
| |
| Anterior Capsulotomy Family Members | Family members of patients who have previously been treated with an anterior capsulotomy procedure for obsessive compulsive disorder will be included in this group |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| deep brain stimulation | Device | Electrical stimulation of the anterior limb of the internal capsule or bed nucleus of the stria terminalis |
|
| Measure | Description | Time Frame |
|---|---|---|
| Semi-structured Interview | A semi-structured interview of patients and one of their family members will be conducted. Patients and family members will be interviewed separately. The interview will consist of several open ended questions around several themes. The interviews for patients and family members will have their own focus. Patient interviews will focus on living with OCD, living with PNS and the decision making process leading to the PNS procedure. Family member interviews will focus on their own experience in their interaction with OCD patients both before and after PNS | up to 180 months after surgery |
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Inclusion Criteria:
Exclusion Criteria:
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In the University Hospital of Leuven, more than thirty patients suffering from severe OCD have been treated with DBS. The investigators will ask patients who are currently being treated with DBS whether they are willing to participate in this study. The investigators will also ask whether one of their family members might participate, preferentially their partner or another close family member. The aim is to include at least ten patients and their family members. OCD patients, who have been treated with anterior capsulotomy, and their family members will also be asked for participation in this study. The aim is to also include ten patients and family members in this group.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Simon Raymaekers, MD | Contact | 003216342690 | simon.raymaekers@uzleuven.be |
| Name | Affiliation | Role |
|---|---|---|
| Chris Bervoets, MD, PhD | UPC KU Leuven | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| UZ Leuven | Recruiting | Leuven | Vlaams-Brabant | 3000 | Belgium |
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| anterior capsulotomy | Procedure |
|
| ID | Term |
|---|---|
| D009771 | Obsessive-Compulsive Disorder |
| ID | Term |
|---|---|
| D001008 | Anxiety Disorders |
| D001523 | Mental Disorders |
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| ID | Term |
|---|---|
| D046690 | Deep Brain Stimulation |
| ID | Term |
|---|---|
| D004599 | Electric Stimulation Therapy |
| D013812 | Therapeutics |
| D013514 | Surgical Procedures, Operative |
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