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The goal of this research is to evaluate the relative advantage of remote counseling over usual care in community health practices without access to genetic services. We will evaluate ability of remote telemedicine, referred to going forward as TeleGenetic services (phone or videoconferencing), to increase uptake of genetic testing and identification of genetic carriers compared to usual care. Secondly, we will evaluate the advantages of videoconferencing over telephone for delivery of remote genetic services and the short-term and longitudinal outcomes of TeleGenetic services in socio-demographically diverse patients in community practices.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Remote cancer genetic services by videoconference |
| ||
| Remote cancer genetic services by telephone |
| ||
| Usual Care |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Penn genetic counselors provides counseling and test results disclosure by videoconferene to patient at community site | Behavioral | Baseline and follow up survey |
|
| Measure | Description | Time Frame |
|---|---|---|
| Completion of Surveys | 3 years |
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Inclusion Criteria:
Exclusion Criteria:
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Candidate for genetic testing for BRCA or colon cancer related genes
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| Name | Affiliation | Role |
|---|---|---|
| Angela Bradbury, MD | Abramson Cancer Center at Penn Medicine | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Union Hospital | Elkton | Maryland | 21921 | United States | ||
| Cape Regional Medical Center |
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| Penn genetic counselor provides counseling and test results disclosure by telephone to patient at community site | Behavioral | Baseline and follow up surveys |
|
| Patient receives written information on how to find genetic services in their area | Behavioral | Baseline and follow up surveys |
|
| Cape May Court House |
| New Jersey |
| 08210 |
| United States |
| Kennedy Health | Sewell | New Jersey | 08080 | United States |
| Shore Cancer Center | Somers Point | New Jersey | 08244 | United States |
| Gettysburg Cancer Center | Gettysburg | Pennsylvania | 17325 | United States |
| Drexel Cancer Care at Hahnemann | Philadelphia | Pennsylvania | 19102 | United States |
| Abramson Cancer Center of the University of Pennsylvania | Philadelphia | Pennsylvania | 19104 | United States |
| ID | Term |
|---|---|
| D001943 | Breast Neoplasms |
| D010051 | Ovarian Neoplasms |
| D015179 | Colorectal Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D001941 | Breast Diseases |
| D012871 | Skin Diseases |
| D017437 | Skin and Connective Tissue Diseases |
| D004701 | Endocrine Gland Neoplasms |
| D010049 | Ovarian Diseases |
| D000291 | Adnexal Diseases |
| D005831 | Genital Diseases, Female |
| D052776 | Female Urogenital Diseases |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
| D005833 | Genital Neoplasms, Female |
| D014565 | Urogenital Neoplasms |
| D000091662 | Genital Diseases |
| D004700 | Endocrine System Diseases |
| D006058 | Gonadal Disorders |
| D007414 | Intestinal Neoplasms |
| D005770 | Gastrointestinal Neoplasms |
| D004067 | Digestive System Neoplasms |
| D004066 | Digestive System Diseases |
| D005767 | Gastrointestinal Diseases |
| D003108 | Colonic Diseases |
| D007410 | Intestinal Diseases |
| D012002 | Rectal Diseases |
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