Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
The investigators want to demonstrate that a new organization with telemedicine could rationalize the treatment pathway of patient suffering from rare skin disease. A diagnosis and a personalised treatment pathway could be performed before the consultation in the hospital.
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| normal care | No Intervention | patient who will have normal treatment pathway | |
| telemedicine | Experimental | patient who will have telemedicine |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| telemedicine | Procedure | treatment pathway organized by telemedicine |
|
| Measure | Description | Time Frame |
|---|---|---|
| Number of hospital visits | Interest of a procedure of telemedicine on the organization of the treatment pathway of patients affected by rare skin diseases in terms of change of the number of visit in hospital. | 6 months |
| Measure | Description | Time Frame |
|---|---|---|
| Improvement of the treatment pathway and its organization | Traceability in the information system by composite criteria : number of completed application forms, number of meeting per month, number of meeting a month, number of patients treated a month, time dedicated to the logistical coordination (collection by sheets of weekly time) and number of new patients per month. | 6 months |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Affiliation | Role |
|---|---|---|
| Juliette Mazereeuw-Hautier, MD . PHD | University Hospital, Toulouse | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| UHToulouse | Toulouse | 31059 | France |
Not provided
| ID | Term |
|---|---|
| D012871 | Skin Diseases |
| ID | Term |
|---|---|
| D017437 | Skin and Connective Tissue Diseases |
Not provided
Not provided
| ID | Term |
|---|---|
| D017216 | Telemedicine |
| ID | Term |
|---|---|
| D003695 | Delivery of Health Care |
| D010346 | Patient Care Management |
| D006298 | Health Services Administration |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Satisfaction of the patient | questionnaire of satisfaction Short Form-36 Health Survey (SF36) | 6 months |
| Change of the cost related to the patient care (direct and indirect). | Composite criteria with number of consultations and hospitalizations, number of visit in hospital and number of days of work and school absenteeism. | 6 months |
| management of time by the medical personal. | collection by sheets of weekly time | 6 months |