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| Name | Class |
|---|---|
| Hospices Civils de Lyon | OTHER |
| Versailles Hospital | OTHER |
| Tenon Hospital, Paris | OTHER |
| Bicetre Hospital |
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The investigators created a cohort of patients with juvenile inflammatory rheumatisms with the purpose to follow them prospectively, and investigate the tolerance and efficacy of immunosuppresive and biological agents.
The JIR-cohort has to be filled by an authorized investigator during or after the consultation. Each patient much be followed at least once a year.
Different data are requested in the JIR-cohort: diagnosis, treatment, adverse events and outcome.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Juvenile Inflammatory Rheumatism | Juvenile Inflammatory Rheumatism patients |
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| Measure | Description | Time Frame |
|---|---|---|
| Number of severe and very severe adverse event as a mesure of safety and tolerability | 10 years | |
| Number of treatments prescribed off label | 10 Years | |
| Length in months of drug survival in patient treated with at least two consecutive biological agents | 10 Years |
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Inclusion Criteria:
Exclusion Criteria:
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All patients with juvenile inflammatory diseases
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| Name | Affiliation | Role |
|---|---|---|
| Michael Hofer | University of Lausanne Hospitals | Study Director |
| Véronique Hentgen | Versailles Hospital | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hôpital Reine Fabiola | Brussels | Belgium | ||||
| CHU Charleroi |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 32527868 | Derived | Pouletty M, Borocco C, Ouldali N, Caseris M, Basmaci R, Lachaume N, Bensaid P, Pichard S, Kouider H, Morelle G, Craiu I, Pondarre C, Deho A, Maroni A, Oualha M, Amoura Z, Haroche J, Chommeloux J, Bajolle F, Beyler C, Bonacorsi S, Carcelain G, Kone-Paut I, Bader-Meunier B, Faye A, Meinzer U, Galeotti C, Melki I. Paediatric multisystem inflammatory syndrome temporally associated with SARS-CoV-2 mimicking Kawasaki disease (Kawa-COVID-19): a multicentre cohort. Ann Rheum Dis. 2020 Aug;79(8):999-1006. doi: 10.1136/annrheumdis-2020-217960. Epub 2020 Jun 11. |
| Label | URL |
|---|---|
| Official jir-cohorte project webpage | View source |
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| OTHER |
| University of Lausanne Hospitals | OTHER |
| University Hospital Muenster | OTHER |
| Fondation Rhumatismes-Enfants-Suisse | UNKNOWN |
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| Charleroi |
| Belgium |
| UZ Leuven | Leuven | 3000 | Belgium |
| CHC Liège | Liège | Belgium |
| CHR Citadelle | Liège | Belgium |
| CHU Belfort | Belfort | France |
| CHRU Besançon | Besançon | France |
| Hôpital Pellegrin enfants | Bordeaux | 33000 | France |
| CHRU Brest | Brest | France |
| Hôpital Femme Mère Enfant | Bron | 69677 | France |
| CHU Clermont-Ferrand | Clermont-Ferrand | 63003 | France |
| CHU de Grenoble | Grenoble | France |
| Hôpital Bicêtre | Le Kremlin-Bicêtre | 94270 | France |
| CHRU Lille | Lille | France |
| Hôpital Nord Marseille | Marseille | France |
| CHU Arnaud de Villeneuve | Montpellier | 34295 | France |
| Centre hospitalier de Mulhouse | Mulhouse | 68100 | France |
| CHU Nantes | Nantes | France |
| Nice CHU - Lenval | Nice | France |
| CHU Nimes | Nîmes | France |
| Hôpital necker Enfants Malade | Paris | France |
| Hôpital Robert Debré | Paris | France |
| Hôpital Tenon | Paris | France |
| CHU Reims | Reims | France |
| CHU Rennes | Rennes | France |
| CHU St-Etienne | Saint-Etienne | France |
| Hôpital de Hautepierre | Strasbourg | 67100 | France |
| Hôpital des enfants | Toulouse | 31059 | France |
| CHU Tours | Tours | France |
| Hôpital André Mignot | Versailles | 78157 | France |
| University Hospital Muenster | Münster | Germany |
| Hôpital Ibnou Rochd | Casablanca | 20042 | Morocco |
| CHUV | Lausanne | Canton of Vaud | 1011 | Switzerland |
| Kantonsspital Aarau | Aarau | 5000 | Switzerland |
| Kinderspital Basel | Basel | 4056 | Switzerland |
| Universitäts-Augenklinik Basel | Basel | Switzerland |
| Ospedale Regionale di Bellinzona e valli | Bellinzona | Switzerland |
| Kantonspital Graubunden | Chur | 7000 | Switzerland |
| Hôpital Ophtalmique | Lausanne | 1004 | Switzerland |
| Kinderspital Luzern | Lucerne | 6000 | Switzerland |
| Ospedale Regionale di Lugano | Lugano | Switzerland |
| Ostschweizer Kinderspital St-Gallen | Sankt Gallen | Switzerland |
| Klinik für Rheumatologie und internistische Rehabilitation | Valens | 7317 | Switzerland |
| Kantonspital Winterthur | Winterthur | Switzerland |
| Kinderspital Zürich | Zurich | 8032 | Switzerland |
| ID | Term |
|---|---|
| D001171 | Arthritis, Juvenile |
| D012216 | Rheumatic Diseases |
| ID | Term |
|---|---|
| D001168 | Arthritis |
| D007592 | Joint Diseases |
| D009140 | Musculoskeletal Diseases |
| D003240 | Connective Tissue Diseases |
| D017437 | Skin and Connective Tissue Diseases |
| D001327 | Autoimmune Diseases |
| D007154 | Immune System Diseases |
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