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| Name | Class |
|---|---|
| Patient-Centered Outcomes Research Institute | OTHER |
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The proposed study uses a recent policy change in Ohio as a natural experiment to assess outcomes and experiences of children who qualify for Medicaid under the Aged, Blind, Disabled category and their caregivers in an ACO model of care compared to their previous outcomes and experiences in a traditional fee-for-service model.
Children with disabilities have complex healthcare needs requiring multiple providers in multiple locations. The lack of coordinated care for this vulnerable population leads to poorer outcomes, higher costs, and increased stress and time demands for patients and their caregivers. Traditionally, under arrangements known as fee-for-service, there have been no financial incentives for providers to coordinate care; however, the Affordable Care Act is changing that. Accountable care organizations (ACOs) are groups of healthcare providers that organize in new ways to take responsibility for the care of a defined population. ACOs share in any savings associated with improved quality and efficiency of the care they provide. Although most ACOs currently do not cover children with disabilities, many are considering adding these to the populations they serve. Yet little is known about effectiveness of the care coordination strategies they employ on children with disabilities.
The goal of this research is to assess care coordination for and patient-centered outcomes of children with disabilities (who qualify for Medicaid under the Aged, Blind, Disabled category (ABD) under an ACO as compared with traditional fee-for-service plans. The investigators will use a recent policy change in Ohio that mandates children with disabilities move from traditional fee-for-service Medicaid plans into managed care arrangements such as ACOs. This mandate resulted in 8,000 disabled children automatically becoming part of the nation's largest pediatric ACO.
The investigators will use multiple methods, including focus groups, interviews, a survey, medical record data, and Medicaid claims, to compare patient experiences and care under the ACO with experiences and care under the previous fee-for-service model. What impact will this research have? Our research will inform ACOs about the relative benefits and challenges of coordinating care and improving the health outcomes of children with disabilities and will help those organizations determine whether or not they can adequately serve the needs of this population. In addition, the findings will provide patients and caregivers with valuable information that can help them make decisions when faced with an increasingly common scenario, for example: "The parents of a child with cerebral palsy receive a letter from their state Medicaid program that children are being enrolled in an 'accountable care organization.' How certain can they be that their child's care will be improved? What are the problems that might occur?" The investigators will engage patients, their caregivers, and health system stakeholders throughout the research process. Patient advocates have been involved in the design of our study. A patient advisory panel comprised of caregivers and advocates of disabled children will guide our project by providing advice at quarterly meetings. In addition, the investigators plan to collect data from more than 2,800 patient voices through direct study participation.
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| Measure | Description | Time Frame |
|---|---|---|
| Percent of Caregivers Who Reported That Their Child Has a Designated Care Coordinator | This outcome was measured using the validated tool, "Family Experiences with Coordination of Care" (FECC) survey. The FECC survey is made up of 20 separate and independent quality indicators related to care coordination for children with medical complexity. To be included in the denominator for this measure, caregivers first had to report that their child visited more than one doctor's office or used more than one kind of health care service in the 12 months prior to the survey date. To measure the percent of caregivers who reported that their child has a designated care coordinator among those in the denominator, caregivers needed to have answered yes to one of the following two questions: "Did anyone in the main provider's office help you to manage your child's care or treatment from different doctors or care providers?" or "Did anyone outside of the main provider's office help you to manage your child's care or treatment from different doctors or care providers?". | 12 month lookback from time of survey |
| Measure | Description | Time Frame |
|---|---|---|
| Percent of Caregivers Who Reported That Their Care Coordinator Asked About Caregiver Concerns and Changes in the Child's Health | This outcome was measured using FECC survey. To be included in the denominator for this measure, caregivers first had to report that their child visited more than one doctor's office or used more than one kind of health care service in the 12 months prior to the survey date AND were contacted by their care coordinator in the past 3 months. Caregivers then had to respond positively to both of the following two questions: "In the last 3 months, when the person who helped you with managing your child's care contacted you, how often did he or she ask if you had any concerns about your child's health or treatment?" and "In the last 3 months, when the person who helped you with managing your child's care contacted you, how often did he or she ask if your child's health had changed in any way?". |
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Inclusion Criteria:
Stakeholder Interviews
- Be associated with the ACO as ACO leadership, a care coordinator, a payor or policy-maker.
Caregiver Interviews
Focus Groups, Caregivers and Youth
Exclusion Criteria:
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Children who qualify for Medicaid under the Aged, Blind, and Disabled category, and their caregivers, who are part of the Nationwide Children's Hospital Partners for Kids Accountable Care Organization (ACO) in Columbus, Ohio.
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| Name | Affiliation | Role |
|---|---|---|
| Paula Song, PhD | UNC Chapel Hill | Principal Investigator |
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| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 33630503 | Derived | Hilligoss B, Tanenbaum SJ, Paul MH, Ferrari RM, Song PH. What makes health services usable?: Insights from a qualitative study of caregivers of children with disabilities. Health Care Manage Rev. 2021 Apr-Jun 01;46(2):111-122. doi: 10.1097/HMR.0000000000000249. | |
| 32519336 | Derived | Song PH, White BA, Chisolm DJ, Berney S, Domino ME. The effect of an accountable care organization on dental care for children with disabilities. J Public Health Dent. 2020 Sep;80(3):244-249. doi: 10.1111/jphd.12375. Epub 2020 Jun 9. |
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64,382 met eligibility criteria for inclusion in the claims data analysis which was non-human subjects research.
Claims data records for 64,382 participants were analyzed to address Claims Data Analysis (Aim 3).
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| ID | Title | Description |
|---|---|---|
| FG000 | Accountable Care Organization (ACO) Stakeholder Interviews | Stakeholders from the ACO, insurance payers, departments of health, and representatives from other stakeholder organizations who have knowledge of/experience with care coordination for children with disabilities before and after the 2013 policy change. Informants included leaders, staff, clinicians, representatives Medicaid managed care organizations, and representatives from public health organizations. |
| FG001 | Caregiver & Youth Focus Groups | Caregivers of children with disabilities, and youth (i.e. patients) with disabilities. To be eligible to participate, the child (as the participant, OR of the caregiver) must:
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| FG002 | Caregiver Interviews | Caregivers of children with disabilities. To be eligible to participate, the caregiver's child must: 1. Have resided continuously in the region served by the ACO, have been continuously enrolled in Medicaid, and have had Medicaid Aged, Blind, or Disabled (ABD) status since at least one year before the policy change; 2. Be no more than 18 years of age at the time of data collection; and 3. Have been, at the time of the policy change, at least 2 years of age. |
| FG003 | Caregiver Survey | Caregivers of children with disabilities who are part of the ACO, and fall into one of three categories: 1) children with ABD status with continuous enrollment since July 2013; 2) children with ABD status with 12 month continuous enrollment as of February 2015; and 3) children who were ABD status as of July 2013 who are no longer eligible for ABD but qualify for Medicaid and are still in the ACO. |
| FG004 | Claims Data-ACO Sample | Claims and enrollment data from the Ohio Medicaid program from August 2011-July 2016 (23 months before entering ACO, 30 months post); dataset includes any child who was ABD status at any point during August 2011-June 2016; dataset does not include children without ABD status. These are unique participants. They were not consented or considered "enrolled". |
| FG005 | Claims Data-Control Sample | Claims and enrollment data from the Ohio Medicaid program from August 2011-July 2016 (23 months before entering ACO, 30 months post); dataset includes children with disabilities on Medicaid under ABD who moved from fee-for-service coverage to non-ACO managed care. Excluded children who enrolled in managed care before the policy change and children not in managed care after the policy change. These are unique participants. They were not consented or considered "enrolled". |
| Title | Milestones | Reasons Not Completed | ||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Pediatric Claims Data Analysis (Aim 3) |
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| Pediatric Adult Caregiver Survey (Aim 2) |
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| Interviews & Focus Groups (Aim 1) |
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| ACO Stakeholder Interviews (Aim 1) |
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| ID | Title | Description |
|---|---|---|
| BG000 | ACO Stakeholder Interviews | Stakeholders from the ACO, insurance payers, departments of health, and representatives from other stakeholder organizations who have knowledge of/experience with care coordination for children with disabilities before and after the 2013 policy change. Informants included leaders, staff, clinicians, representatives Medicaid managed care organizations, and representatives from public health organizations. |
| Units | Counts |
|---|---|
| Participants |
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| Title | Description | Population Description | Parameter Type | Dispersion Type | Unit of Measure | Calculate Percentage | Denominator Units Selected | Denominators | Classes |
|---|---|---|---|---|---|---|---|---|---|
| Age, Categorical | Age was missing for 1 person from the focus groups. Age was missing for 5 persons from the caregiver survey. No data were collected for the ACO stakeholder arm/groups. |
| Type | Title | Description | Population Description | Reporting Status | Anticipated Posting Date | Parameter Type | Dispersion Type | Unit of Measure | Calculate Percentage | Time Frame | Units Analyzed | Denominator Units Selected | Arm/Group Information | Denominators | Classes | Analyses |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Primary | Percent of Caregivers Who Reported That Their Child Has a Designated Care Coordinator | This outcome was measured using the validated tool, "Family Experiences with Coordination of Care" (FECC) survey. The FECC survey is made up of 20 separate and independent quality indicators related to care coordination for children with medical complexity. To be included in the denominator for this measure, caregivers first had to report that their child visited more than one doctor's office or used more than one kind of health care service in the 12 months prior to the survey date. To measure the percent of caregivers who reported that their child has a designated care coordinator among those in the denominator, caregivers needed to have answered yes to one of the following two questions: "Did anyone in the main provider's office help you to manage your child's care or treatment from different doctors or care providers?" or "Did anyone outside of the main provider's office help you to manage your child's care or treatment from different doctors or care providers?". | To be included in the analysis for this measure, caregivers first had to report that their child visited more than one doctor's office or used more than one kind of health care service in the 12 months prior to the survey date. | Posted | Count of Participants | Participants | 12 month lookback from time of survey |
14 months total, from March 2015 (beginning of stakeholder interviews) to May 2016 (all focus groups and interviews completed).
The Claims Data ACO and Claims Data Control sample were not monitored for adverse events.
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| ID | Title | Description | Deaths (Affected) | Deaths (At Risk) | Serious Events (Affected) | Serious Events (At Risk) | Other Events (Affected) | Other Events (At Risk) |
|---|---|---|---|---|---|---|---|---|
| EG000 | Accountable Care Organization (ACO) Stakeholder Interviews | Stakeholders from the ACO, insurance payers, departments of health, and representatives from other stakeholder organizations who have knowledge of/experience with care coordination for children with disabilities before and after the 2013 policy change. Informants included leaders, staff, clinicians, representatives Medicaid managed care organizations, and representatives from public health organizations. |
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| Title | Organization | Phone | Extension | |
|---|---|---|---|---|
| Renée Ferrari, PhD | University of North Carolina at Chapel Hill | (919) 843-1341 | rferrari@unc.edu |
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| Type | Includes Protocol | Includes SAP | Includes ICF | Document Label | Document Date | Document Uploaded Date | Document File Name |
|---|---|---|---|---|---|---|---|
| Prot_SAP | Yes | Yes | No | Study Protocol and Statistical Analysis Plan | Feb 17, 2015 | Jan 24, 2019 | Prot_SAP_000.pdf |
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| 3 month lookback from time of survey |
| Percent of Caregivers Who Reported Receiving a Comprehensive Written After-visit Summary in the Past 12 Months | This outcome was measured using FECC survey. To be included in the denominator for this measure, caregivers first had to report that they received a written after-visit summary from their child's main provider's office. Caregivers then had to report that the written after-visit summary contained all of the following elements: current problem list, current medication list, drug allergies, specialists involved in the child's care, planned follow-up, and what to do for problems related to the outpatient visit. | 12 month lookback from time of survey |
| Percent of Caregivers Who Reported That Their Child's Primary Care Provider Created a Shared Care Plan for Their Child | This outcome was measured using FECC survey. Caregivers needed to have answered yes to the following question: "Has the main provider created a shared care plan for your child?". | 12 month lookback from time of survey |
| Use of One or More Well-child Visits <=6 Years Old | Indicator of use of an age-appropriate well-child visit for children less than or equal to 6 years of age according to the Healthcare Effectiveness Data and Information Set (HEDIS) due to the Accountable Care Organization (ACO). ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Use of One or More Well-child Visits >=12 Years Old | Use of an age-appropriate well-child visits for children greater than or equal to 12 years of age according to the Healthcare Effectiveness Data and Information Set (HEDIS) due to the ACO. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Indicator of Use of Primary Care | An indicator of one or more outpatient visits to primary care providers (PCP). ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Use of Outpatient Medicaid Visits to Other Behavioral Health Providers | Use of one or more outpatient visits to other mental health specialists besides psychiatrists. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Emergency Department Use | Indicator of utilization of emergency department. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Use of Hospitalizations | Indicator of hospitalization for patients. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Follow-up Within 7 Days After Hospitalization | Indicator of follow-up within 7 days after hospitalization. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 30 months post |
| Follow-up Within 30 Days After Hospitalization | Indicator of having follow-up within 30 days after hospitalization. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Hospital Readmissions Within 30 Days After Discharge | Indicator of hospital readmissions within 30 days after discharge. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control group include any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of readmissions in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Hospitalization for Mental Illness | Indicator of hospitalization for mental illness for patients. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Follow-up Within 7 Days After Hospitalization for Mental Illness | Indicator of follow-up within 7 days after hospitalization for mental illness. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Follow-up Within 30 Days After Hospitalization for Mental Illness | Indicator of follow-up within 30 days after hospitalization for mental illness. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Medication Use - Antidepressants | Indicator of antidepressant medication fills. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Medication Use - Anticonvulsants | Indicator of use of anticonvulsant medication fills. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Medication Use - Anti-anxiety Medications | Indicator of use of anti-anxiety medication. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Medication Use - Anti-psychotic Medications | Indicator of use of anti-psychotic medication. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Medication Use - ADHD Medications | Indicator of use of attention deficit hyperactivity disorder (ADHD) medications. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Medication Use - Asthma Medications | Indicator of asthma medications fills. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| Follow-up Within 30 Days After ADHD Prescription | Indicator of one or more follow-up visits within 30 days after ADHD (attention deficit hyperactivity disorder) prescription. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | 23 months before policy change (2013), 36 months post |
| 30449647 | Derived | Sheftall AH, Chisolm DJ, Alexy ER, Chavez LJ, Mangione-Smith RM, Ferrari RM, Song PH. Satisfaction With Care Coordination for Families of Children With Disabilities. J Pediatr Health Care. 2019 May-Jun;33(3):255-262. doi: 10.1016/j.pedhc.2018.08.010. Epub 2018 Nov 16. |
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| BG001 | Caregiver & Youth Focus Groups | Caregivers of children with disabilities, and youth (i.e. patients) with disabilities. To be eligible to participate, the child (as the participant, OR of the caregiver) must:
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| BG002 | Caregiver Interviews | Caregivers of children with disabilities. To be eligible to participate, the caregiver's child must: 1. Have resided continuously in the region served by the ACO, have been continuously enrolled in Medicaid, and have had Medicaid Aged, Blind, or Disabled (ABD) status since at least one year before the policy change; 2. Be no more than 18 years of age at the time of data collection; and 3. Have been, at the time of the policy change, at least 2 years of age. |
| BG003 | Caregiver Survey | Caregivers of children with disabilities who are part of the ACO, and fall into one of three categories: 1) children with ABD status with continuous enrollment since July 2013; 2) children with ABD status with 12 month continuous enrollment as of February 2015; and 3) children who were ABD status as of July 2013 who are no longer eligible for ABD but qualify for Medicaid and are still in the ACO. |
| BG004 | Claims Data-ACO Sample | Claims and enrollment data from the Ohio Medicaid program from August 2011-July 2016 (23 months before entering ACO, 30 months post); dataset includes any child who was ABD status at any point during August 2011-June 2016; dataset does not include children without ABD status. These are unique participants. They were not consented or considered "enrolled". |
| BG005 | Claims Data-Control Sample | Claims and enrollment data from the Ohio Medicaid program from August 2011-July 2016 (23 months before entering ACO, 30 months post); dataset includes children with disabilities on Medicaid under ABD who moved from fee-for-service coverage to non-ACO managed care. Excluded children who enrolled in managed care before the policy change and children not in managed care after the policy change. These are unique participants. They were not consented or considered "enrolled". |
| BG006 | Total | Total of all reporting groups |
| Count of Participants |
| Participants |
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| Age, Continuous | Demographic data for ACO Stakeholder Interviews were not collected. Age was missing for 1 person from the focus groups. Age was missing for 5 persons from the caregiver survey. | Mean | Full Range | years |
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| Sex: Female, Male | We collected 2062 caregiver surveys. For the analyses, we dropped one survey because the participant's demographic data on the caregiver survey did not match medical record data. Because we dropped one survey, the final sample size for analysis was 2061. Did not collect demographic data for the ACO stakeholder interview arm/group. | Count of Participants | Participants |
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| Ethnicity (NIH/OMB) | We did not collect demographic data on our key informants. Ethnicity data are not available for the Claims Data-ACO Sample/Claims Data Control Sample. | Count of Participants | Participants |
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| Race (NIH/OMB) | We did not collect demographic data on our key informants. | Count of Participants | Participants |
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| Region of Enrollment | We collected 2062 caregiver surveys. For the analyses, we dropped one survey because the participant's demographic data on the caregiver survey did not match medical record data. Because we dropped one survey, the final sample size for analysis was 2061. | Count of Participants | Participants |
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| Secondary | Percent of Caregivers Who Reported That Their Care Coordinator Asked About Caregiver Concerns and Changes in the Child's Health | This outcome was measured using FECC survey. To be included in the denominator for this measure, caregivers first had to report that their child visited more than one doctor's office or used more than one kind of health care service in the 12 months prior to the survey date AND were contacted by their care coordinator in the past 3 months. Caregivers then had to respond positively to both of the following two questions: "In the last 3 months, when the person who helped you with managing your child's care contacted you, how often did he or she ask if you had any concerns about your child's health or treatment?" and "In the last 3 months, when the person who helped you with managing your child's care contacted you, how often did he or she ask if your child's health had changed in any way?". | Percentage of participants who reported that their child visited more than one doctor's office or used more than one kind of health care service in the last 12 months and who were contacted by their care coordinator in the past 3 months | Posted | Count of Participants | Participants | 3 month lookback from time of survey |
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| Secondary | Percent of Caregivers Who Reported Receiving a Comprehensive Written After-visit Summary in the Past 12 Months | This outcome was measured using FECC survey. To be included in the denominator for this measure, caregivers first had to report that they received a written after-visit summary from their child's main provider's office. Caregivers then had to report that the written after-visit summary contained all of the following elements: current problem list, current medication list, drug allergies, specialists involved in the child's care, planned follow-up, and what to do for problems related to the outpatient visit. | To be included in the analysis for this measure, caregivers first had to report that they received a written after visit summary in the past 12 months | Posted | Count of Participants | Participants | 12 month lookback from time of survey |
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| Secondary | Percent of Caregivers Who Reported That Their Child's Primary Care Provider Created a Shared Care Plan for Their Child | This outcome was measured using FECC survey. Caregivers needed to have answered yes to the following question: "Has the main provider created a shared care plan for your child?". | Participants who responded to the question, "Has the main provider created a shared care plan for your child?" | Posted | Count of Participants | Participants | 12 month lookback from time of survey |
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| Secondary | Use of One or More Well-child Visits <=6 Years Old | Indicator of use of an age-appropriate well-child visit for children less than or equal to 6 years of age according to the Healthcare Effectiveness Data and Information Set (HEDIS) due to the Accountable Care Organization (ACO). ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | The overall data included children up to 18 years of age; however, only those children less than or equal to 6 years of age were included in the analysis. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Use of One or More Well-child Visits >=12 Years Old | Use of an age-appropriate well-child visits for children greater than or equal to 12 years of age according to the Healthcare Effectiveness Data and Information Set (HEDIS) due to the ACO. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Patients who are greater than or equal to 12 years of age | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Indicator of Use of Primary Care | An indicator of one or more outpatient visits to primary care providers (PCP). ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Use of Outpatient Medicaid Visits to Other Behavioral Health Providers | Use of one or more outpatient visits to other mental health specialists besides psychiatrists. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Emergency Department Use | Indicator of utilization of emergency department. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Use of Hospitalizations | Indicator of hospitalization for patients. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Follow-up Within 7 Days After Hospitalization | Indicator of follow-up within 7 days after hospitalization. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Children who were hospitalized | Posted | Number | person-year observations | 23 months before policy change (2013), 30 months post |
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| Secondary | Follow-up Within 30 Days After Hospitalization | Indicator of having follow-up within 30 days after hospitalization. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Children who were hospitalized | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Hospital Readmissions Within 30 Days After Discharge | Indicator of hospital readmissions within 30 days after discharge. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control group include any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of readmissions in a year to an indicator that the number was greater than zero. | Children who were hospitalized | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Hospitalization for Mental Illness | Indicator of hospitalization for mental illness for patients. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Children hospitalized for mental illness. Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Follow-up Within 7 Days After Hospitalization for Mental Illness | Indicator of follow-up within 7 days after hospitalization for mental illness. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Children hospitalized for mental illness | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Follow-up Within 30 Days After Hospitalization for Mental Illness | Indicator of follow-up within 30 days after hospitalization for mental illness. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Children who were hospitalized for mental illness | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Medication Use - Antidepressants | Indicator of antidepressant medication fills. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Medication Use - Anticonvulsants | Indicator of use of anticonvulsant medication fills. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Medication Use - Anti-anxiety Medications | Indicator of use of anti-anxiety medication. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Medication Use - Anti-psychotic Medications | Indicator of use of anti-psychotic medication. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Medication Use - ADHD Medications | Indicator of use of attention deficit hyperactivity disorder (ADHD) medications. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Medication Use - Asthma Medications | Indicator of asthma medications fills. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of medication fills in a year to an indicator that the number was greater than zero. | Please note that the number of person-year observations is the same for multiple outcomes - as long as a child is enrolled in Medicaid that year, we would have the same number of observations. | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| Secondary | Follow-up Within 30 Days After ADHD Prescription | Indicator of one or more follow-up visits within 30 days after ADHD (attention deficit hyperactivity disorder) prescription. ACO sample includes any child who was ABD at any point during the study time period enrolled in the ACO. Control sample includes any child who was ABD and who moved from fee-for-service coverage to non-ACO managed care during the study period. Transforms a count of actual number of visits in a year to an indicator that the number was greater than zero. | Children who received ADHD (attention deficit hyperactivity disorder) prescription | Posted | Number | person-year observations | 23 months before policy change (2013), 36 months post |
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| 0 |
| 24 |
| 0 |
| 24 |
| 0 |
| 24 |
| EG001 | Caregiver & Youth Focus Groups | Caregivers of children with disabilities, and youth (i.e. patients) with disabilities. To be eligible to participate, the child (as the participant, OR of the caregiver) must:
| 0 | 35 | 0 | 35 | 0 | 35 |
| EG002 | Caregiver Interviews | Caregivers of children with disabilities. To be eligible to participate, the caregiver's child must: 1. Have resided continuously in the region served by the ACO, have been continuously enrolled in Medicaid, and have had Medicaid Aged, Blind, or Disabled (ABD) status since at least one year before the policy change; 2. Be no more than 18 years of age at the time of data collection; and 3. Have been, at the time of the policy change, at least 2 years of age. | 0 | 33 | 0 | 33 | 0 | 33 |
| EG003 | Caregiver Survey | Caregivers of children with disabilities who are part of the ACO, and fall into one of three categories: 1) children with ABD status with continuous enrollment since July 2013; 2) children with ABD status with 12 month continuous enrollment as of February 2015; and 3) children who were ABD status as of July 2013 who are no longer eligible for ABD but qualify for Medicaid and are still in the ACO. | 0 | 2,096 | 0 | 2,096 | 0 | 2,096 |
| EG004 | Claims Data-ACO Sample | Claims and enrollment data from the Ohio Medicaid program from August 2011-July 2016 (23 months before entering ACO, 30 months post); dataset includes any child who was ABD status at any point during August 2011-June 2016; dataset does not include children without ABD status. | 0 | 0 | 0 | 0 | 0 | 0 |
| EG005 | Claims Data-Control Sample | Claims and enrollment data from the Ohio Medicaid program from August 2011-July 2016 (23 months before entering ACO, 30 months post); dataset includes children with disabilities on Medicaid under ABD who moved from fee-for-service coverage to non-ACO managed care. Excluded children who enrolled in managed care before the policy change and children not in managed care after the policy change. | 0 | 0 | 0 | 0 | 0 | 0 |
Not provided
Not provided
Not provided
| Between 18 and 65 years |
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| >=65 years |
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| Male |
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| Not Hispanic or Latino |
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| Unknown or Not Reported |
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| Asian |
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| Native Hawaiian or Other Pacific Islander |
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| Black or African American |
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| White |
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| More than one race |
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| Unknown or Not Reported |
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