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The aims of this project are to evaluate the psychometric properties of the German versions of the two performance questionnaires 'Functional Mobility Scale' (FMS) and 'Gillette Functional Assessment Questionnaire - walking scale' (GFAQ) in children between 6-18 years with a neuromuscular diagnosis.
The German versions of the two questionnaires 'Functional Mobility Scale' (FMS) and 'Gillette Functional Assessment Questionnaire - walking scale' (GFAQ) are evaluated in terms of construct validity, inter- and intra-rater reliability as well as responsiveness in children with a neuromuscular diagnosis, who absolve an inpatient stay in the rehabilitation center of the University Chilren's Hospital Zurich, Switzerland.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Gait rehabilitation | Multi-modal therapy program including physiotherapy with the aim of gait improvement, Lokomat or treadmill training, strength training, sports therapy. Frequency and intensity are individually assigned. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Gait rehabilitation | Other |
|
| Measure | Description | Time Frame |
|---|---|---|
| Functional Mobility Scale (FMS) | The questionnaire is filled in independently by the parents, the primary nurse as well as the physiotherapist of each child. | Participants will be followed for the duration of the rehabilitation stay, an expected average of 12 weeks, with measurements at admission and discharge. |
| Gillette Functional Assessment Questionnaire - Walking Scale (GFAQ) | The questionnaire is filled in independently by the parents, the primary nurse as well as the physiotherapist of each child. | Participants will be followed for the duration of the rehabilitation stay, an expected average of 12 weeks, with measurements at admission and discharge. |
| Measure | Description | Time Frame |
|---|---|---|
| Global Rating Scale (GRS) | A global rating on the perceived change of the child's functional mobility over the rehabilitation period and whether this change is perceived as meaningful or not; on a 5-point Likert scale, scored by the parents and the physiotherapist. | Participants will be followed for the duration of the rehabilitation stay, an expected average of 12 weeks, with only one measurement at discharge. |
| Measure | Description | Time Frame |
|---|---|---|
| Functional Independence Measure for Children (WeeFIM) | The WeeFIM-Item Locomotion (Walking) is scored by the primary nurse. | Participants will be followed for the duration of the rehabilitation stay, an expected average of 12 weeks, with measurements at admission and discharge. |
| 10-Meter Walk Test (10MWT) |
Inclusion Criteria:
Exclusion Criteria:
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Children with neuromuscular diagnoses, who are inpatients in the rehabilitation center of the University Children's Hospital Zurich in Affoltern am Albis.
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| Name | Affiliation | Role |
|---|---|---|
| Corinne Ammann-Reiffer, MPTSc | University Children's Hospital Zurich, Rehabilitation Center Affoltern | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University Children's Hospital Zurich, Rehabilitation Center | Affoltern am Albis | CH-8910 | Switzerland |
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| ID | Term |
|---|---|
| D009468 | Neuromuscular Diseases |
| ID | Term |
|---|---|
| D009422 | Nervous System Diseases |
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For the evaluation of the construct validity of the FMS and the GFAQ, the 10MWT comfortable speed as well as maximal speed will be performed shortly before discharge on a 14-meter long track with standardized instructions. |
| Participants will be followed for the duration of the rehabilitation stay, an expected average of 12 weeks, with only one measurement at discharge. |
| 6-Minute walk test (6MinWT) | For the evaluation of the construct validity of the FMS and the GFAQ, the 6MinWT is performed shortly before discharge on a 30-meter long track with standardized instructions. | Participants will be followed for the duration of the rehabilitation stay, an expected average of 12 weeks, with only one measurement at discharge. |