Behavioural Problems in Huntington Disease : Analysis and Enhancement of Caregiver and Patient Experience

The study hypothesis is that caregivers experience allows them to develop a lot of knowledge and know-how about behavioural problems in Huntington Disease and its consequences. The purpose of this study is to collect, describe and analyse caregivers experience in order to find and enhance their knowledge related to the adaptation to behavioural problems of Huntington Disease patients.

Inclusion Criteria:

• For patients:

  • Patients with Huntington Disease declared
  • Huntington Disease diagnosed with abnormal number of CAG repeats: 38 < nucleotide expansion (CAG)
  • Total Functional Capacity ≥ 7
  • Patients living with a caregiver
  • Aged 18 years and above
  • Subject gave its written consent

• For caregivers :

  • No risk of caregiver having Huntington disease
  • Aged 18 years and above
  • Subject gave its written consent

Exclusion Criteria:

• For patients:

  • Patient who do not live with a caregiver
  • No national health insurance affiliation
  • Being under guardianship

• For caregivers :

  • Caregiver at risk for Huntington Disease
  • No national health insurance affiliation
  • Being under guardianship