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inclusion difficult
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The study hypothesis is that caregivers experience allows them to develop a lot of knowledge and know-how about behavioural problems in Huntington Disease and its consequences. The purpose of this study is to collect, describe and analyse caregivers experience in order to find and enhance their knowledge related to the adaptation to behavioural problems of Huntington Disease patients.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients | Other |
| |
| Caregivers | Other |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| questionnaire qualilty of life | Behavioral |
| ||
| psychological interview |
| Measure | Description | Time Frame |
|---|---|---|
| The Huntington's Disease health-related Quality of Life questionnaire | The primary outcome is to find a list of caregiver competences necessary to prevent and adapt to behavioural problems of Huntington Disease patients. | Baseline |
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Inclusion Criteria:
For patients:
For caregivers :
Exclusion Criteria:
For patients:
For caregivers :
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University Hospital of Angers | Angers | Maine Et Loire | 49933 | France |
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| Behavioral |
|
| psychological tests | Behavioral |
|
| Motor evaluation | Other |
|
| Behavioral evaluation | Behavioral |
|
| cognitive tests | Behavioral |
|
| ID | Term |
|---|---|
| D006816 | Huntington Disease |
| ID | Term |
|---|---|
| D001480 | Basal Ganglia Diseases |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D003704 | Dementia |
| D002819 | Chorea |
| D020820 | Dyskinesias |
| D009069 | Movement Disorders |
| D020271 | Heredodegenerative Disorders, Nervous System |
| D019636 | Neurodegenerative Diseases |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D003072 | Cognition Disorders |
| D019965 | Neurocognitive Disorders |
| D001523 | Mental Disorders |
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| ID | Term |
|---|---|
| D007406 | Interview, Psychological |
| D011581 | Psychological Tests |
| D009483 | Neuropsychological Tests |
| ID | Term |
|---|---|
| D011580 | Psychological Techniques |
| D004191 | Behavioral Disciplines and Activities |
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