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Rationale: Patients with neuroendocrine tumors (NET) have a rare disease. Due to treating patients with a neuroendocrine tumor in 'NET knowledge centers' patients often have to travel long distances for follow-up visits at the outpatient clinic. Patients whose medical condition allows videoconsultation could save time by replacing outpatient clinic visits through videoconsultation for receiving follow-up care. Therefore, in this study we aim to introduce videoconsultation as a alternative for follow-up outpatient clinic visits in NET patients.
Objective: The primary objective is to assess if use of videoconsultation in follow-up care for NET patients is feasible. We hypothesize that videoconsultation is a suitable medium for providing follow-up care in NET patients. Secondary objectives are to explore the amount of time videoconsultation takes in comparison with outpatient clinic visits and the acceptability and satisfaction of physicians and patients with using videoconsultation in follow-up care.
Study design: The present study is a single-centre prospective feasibility study.
Study population: Adult NET patients under surveillance or treatment of the department Medical Oncology at the University Medical Centre Groningen (UMCG) whose medical condition allows videoconsultation will be invited to participate.
Intervention: Patient who give informed consent will participate in the study. Participants will receive follow-up care through videoconsultation instead of conventional visits at the outpatient clinic.
Main study parameters/endpoints: The main endpoint is the feasibility of videoconsultation for follow-up care in NET patients. We hypothesize that videoconsultation is a suitable medium for providing follow-up care.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Videoconsultation | Performing two videoconsulations with the treating medical oncologist |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Videoconsultation | Other |
|
| Measure | Description | Time Frame |
|---|---|---|
| Feasibility | Participation rates, reason for declining participation, number of completed videoconsultations, dropout rate and reason for dropout will be noted in study records to evaluate feasibility of videoconsultation | 1 year |
| Measure | Description | Time Frame |
|---|---|---|
| Amount of time | The amount of time NET patients are spending with videoconsultation in comparison with conventional outpatient clinic visits. | 1 year |
| Acceptability and satisfaction of patients |
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Inclusion Criteria:
Exclusion Criteria:
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Neuroendocrine tumor patients (grade 1 and 2) whose medical condition allows videoconsultation.
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| Name | Affiliation | Role |
|---|---|---|
| A.M.E. Walenkamp, MD PhD | University Medical Center Groningen | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University Medical Center Groningen | Groningen | 9713 GZ | Netherlands |
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| ID | Term |
|---|---|
| D018358 | Neuroendocrine Tumors |
| ID | Term |
|---|---|
| D017599 | Neuroectodermal Tumors |
| D009373 | Neoplasms, Germ Cell and Embryonal |
| D009370 | Neoplasms by Histologic Type |
| D009369 | Neoplasms |
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The acceptability and satisfaction of patients with the use of videoconsultation will be assessed with a questionnaire and open-ended questions.
| 1 year |
| Acceptability and satisfaction of physicians | The acceptability and satisfaction of physicians with the use of videoconsultation will be assessed with a questionnaire and open-ended questions. | 1 year |
| D009380 | Neoplasms, Nerve Tissue |