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| Name | Class |
|---|---|
| Hospital Authority, Hong Kong | OTHER_GOV |
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Primary aim:
To compare the effects of customary care and an interventional Home-based Palliative Renal Program (HBPRP) for ESRF patients
To compare the effects of customary care and Home-based Palliative Program (HBPP) for ESRF patients
Secondary aim:
To explore the lived experiences of patients with ESRF. Hypothesis The transitional renal palliative care model is associated with decreased in unscheduled hospital readmission, reduce length of stay as well as improved quality of life for patients with end-stage renal failure.
Objectives
Related to the primary aim:
Are there differences in healthcare utilization between the ESRF patients in the customary care group and those in the HBPRP group; in the HBPRP group and HBPP group?
Are there differences in evaluated health outcomes (functional status, symptom intensity, and satisfaction with care) between the customary care group and the HBPRP group ; in the HBPRP group and HBPP group?
Are there differences in perceived health outcomes (quality of life, caregiver burden) between the customary care group and the HBPRP group; in the HBPRP group and HBPP group?
Related to the secondary aim:
How are the lived experiences compared and contrasted between the customary care group and the HBPRP group; in the HBPRP group and HBPP group?
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Transitional Palliative Care | Experimental | Transitional palliative care include:-
|
|
| Customary care | No Intervention | Customary care receive care :-
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Transitional community based palliative care | Behavioral | transitional palliative care include:-
|
| Measure | Description | Time Frame |
|---|---|---|
| Healthcare utilization composite - The dates of re-hospitalizations, length of stay, and number of other hospital services used, including clinics and emergency room visits, will be extracted from the hospital administrative systems. | for 12 months |
| Measure | Description | Time Frame |
|---|---|---|
| Evaluated health outcomes composite (functional status, symptom intensity) - The functional status will be measured by the Palliative Performance Scale (PPS )(appendix 6). | The PPS is a clinical tool commonly used in the local settings. The level of physical performance is rated on a scale of 100 (normal) to 0 (death), measured in 10 % decrement levels. The scale has been validated and the inter-rater reliability between doctors and nurses maintained at .85 with strong kappa values of .97 (Myers J, Gardiner K, Harris K et al., 2010). |
| Measure | Description | Time Frame |
|---|---|---|
| Perceived outcomes composite (quality of life, caregiver burden, satisfaction with care) | Quality of life will be measured by an ESRF-specific quality of life measure. The caregiver burden will be measured by the Zarit Caregiver Burden Scale (ZCBS). Satisfaction with care will be measured by the 15-item questionnaire | 12 months |
Inclusion Criteria:
Exclusion Criteria:
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Queen Elizabeth Hospital | Hong Kong | Hong Kong SAR | 852 | Hong Kong |
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| ID | Term |
|---|---|
| D007676 | Kidney Failure, Chronic |
| D051436 | Renal Insufficiency, Chronic |
| ID | Term |
|---|---|
| D051437 | Renal Insufficiency |
| D007674 | Kidney Diseases |
| D014570 | Urologic Diseases |
| D052776 | Female Urogenital Diseases |
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|
| 12 months |
| D005261 |
| Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
| D052801 | Male Urogenital Diseases |
| D002908 | Chronic Disease |
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |