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This study is assessing quality of life in children with a physical disability who participate in the Children's Hospital Colorado Hospital Sports Program (HSP), where children with physical disabilities are able to participate in more organized sports and active programs with the use of adaptive equipment. This study would assess a child's self reported and parent perceived quality of life before and after child participation in HSP for the winter season. The investigators aim to determine the level of child and parent happiness and satisfaction in specific quality of life aspects including: physical activities and health, feelings, moods, self perception, home life, friends, school, learning and bullying. The investigators believe that children with any physical disability will have a more satisfactory reported quality of life after participating in HSP for one or many years.
The purpose of this proposed research is to quantify the impact of participation in an adaptive ski/snowboarding program on parent perceived and child self-reported health related quality of life. To this effect, the study will assess children's self-perception of psychological, emotional, physical health of participants as well as their parents perception of the same, through the use of a validated self reported quality of life questionnaire, KIDSCREEN-52, before and after participating in an adaptive ski/snowboarding program every year.
Primary Aims:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Children with Physical Disabilities | This group includes children 8-18 years old participating in an adapted ski/snowboarding program with any type of physical disability, including cerebral palsy, traumatic brain injury, spinal cord injury, and amputation. |
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| Measure | Description | Time Frame |
|---|---|---|
| Physical Wellbeing | Short-term and long-term changes in the physical wellbeing assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| Psychological Wellbeing | Short-term and long-term changes in the psychological wellbeing assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| Moods and Emotions | Short-term and long-term changes in the moods and emotions assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| Self Perception | Short-term and long-term changes in the self perception assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| Autonomy |
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Inclusion Criteria:
Exclusion Criteria:
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The Hospital Sports Program at Children's Hospital Colorado only has the capability to accommodate 60 to 65 children a year. This study contacts all of the subjects who meet the study inclusion criteria from the enrolled HSP participant list. It should be noted that the investigators will only be recruiting from children already participating in HSP; they will not be recruiting for children to join HSP.
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| Name | Affiliation | Role |
|---|---|---|
| Frank Chang, MD | Children's Hospital Colorado | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Children's Hospital Colorado | Aurora | Colorado | 80045 | United States |
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| ID | Term |
|---|---|
| D002547 | Cerebral Palsy |
| D000070642 | Brain Injuries, Traumatic |
| D013119 | Spinal Cord Injuries |
| D000092862 | Psychological Well-Being |
| ID | Term |
|---|---|
| D001925 | Brain Damage, Chronic |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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Short-term and long-term changes in the autonomy assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. |
| Up to 5 years after study enrollment |
| Parents | Short-term and long-term changes in the feelings towards parents assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| Financial | Short-term and long-term changes in the feelings towards finance assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| Peers | Short-term and long-term changes in the feelings towards peers assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| School | Short-term and long-term changes in the feelings toward school assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| Bullying | Short-term and long-term changes in the feelings toward bullying assessed by both the child and parent in the questionnaire will be compared. The pre-season and post-season questionnaires from the same ski season will be used to compare changes after participation in one season. The earliest pre-season questionnaire and most recent post-season questionnaire will be compared to evaluate long-term changes. | Up to 5 years after study enrollment |
| D001930 | Brain Injuries |
| D006259 | Craniocerebral Trauma |
| D020196 | Trauma, Nervous System |
| D014947 | Wounds and Injuries |
| D013118 | Spinal Cord Diseases |
| D010549 | Personal Satisfaction |
| D001519 | Behavior |