Implications for Quality of Life and Quality of Care in Patients With Hereditary Haemochromatosis

Implications for Quality of Life and Quality of Care in Patients With Hereditary Haemochromatosis

Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital.

Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital during follow-up

Inclusion Criteria:

• phase 1: experts in the field of haemochromatosis (hepatologists, hematologists, endocrinologists, general practitioner, nurses, ...)
• phase 2: patients with hereditary haemochromatosis, treatment with phlebotomy since 3 months, Dutch/English speaking

Exclusion Criteria:

• patients with secondary iron overload
• phlebotomy treatment less than 3 months
• language: no Dutch or English