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The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) developed a Web-based registry for nutrition care launched in early 2011, initially focusing on the home parenteral nutrition (HPN) patient population. The purpose of Sustain is to collect information regarding the patients and populations who require HPN in the United States, measure outcomes associated with HPN, allow institutional benchmarking against the aggregate data, and publish the findings to improve the quality of care for patients receiving HPN. The registry is open to all sites (hospital and home based) who care for new or existing HPN patients.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Home PN - pediatric | Pediatric patients (under 18) on Home PN |
| |
| Adult patients on Home PN | Adult patients on Home PN |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| all patients on Home Parenteral Nutrition | Other |
|
| Measure | Description | Time Frame |
|---|---|---|
| catheter infection rate | catheter infection rate normalized per 1000 PN days | per 1000 PN days |
| Measure | Description | Time Frame |
|---|---|---|
| rehospitalization rate | rehospitalization rate per 1000 PN days | ongoing |
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Inclusion Criteria:must receive PN at home -
Exclusion Criteria:patients receiving PN in long-term care or as IDPN
-
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patients receiving parenteral nutrition at home
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| A.S.P.E.N. | Silver Spring | Maryland | 20910 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 22282869 | Background | Guenter P, Robinson L, DiMaria-Ghalili RA, Lyman B, Steiger E, Winkler MF. Development of Sustain: A.S.P.E.N.'s National Patient Registry for Nutrition Care. JPEN J Parenter Enteral Nutr. 2012 Jul;36(4):399-406. doi: 10.1177/0148607111432760. Epub 2012 Jan 26. | |
| 25972431 | Result | Winkler MF, DiMaria-Ghalili RA, Guenter P, Resnick HE, Robinson L, Lyman B, Ireton-Jones C, Banchik LH, Steiger E. Characteristics of a Cohort of Home Parenteral Nutrition Patients at the Time of Enrollment in the Sustain Registry. JPEN J Parenter Enteral Nutr. 2016 Nov;40(8):1140-1149. doi: 10.1177/0148607115586575. Epub 2015 May 13. |
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