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The main purpose of this study is to assess conception, pregnancy, childbirth, and pain experiences among women who have been diagnosed with vulvodynia. Specifically, this study aims to examine the following among women who have been diagnosed with vulvodynia: 1) rates of pregnancy/childbirth and desire for children; 2) fear of pregnancy and childbirth; 3) potential difficulties experienced while attempting to become pregnant and during pregnancy/childbirth; 4) methods used to become pregnant and deliver; 5) methods used to manage vulvodynia symptoms during pregnancy; and 6) pain outcomes associated with pregnancy.
Very little research has examined pregnancy/childbirth experiences among women with vulvodynia, or the natural history of vulvodynia. As such this is a preliminary investigation that will provide descriptive information regarding many of the proposed research questions. Based on the clinical experience of the investigators, it is expected that women with vulvodynia will report lower rates of pregnancy and higher levels of fear about pregnancy and childbirth in comparison to women without such pain. It is also expected that women with vulvodynia will report more difficulties becoming pregnant as compared to women without such pain, and that women with vulvodynia will report more elective nonvaginal births in comparison to vaginal births.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| vulvodynia | Women with vulvodynia | ||
| control | Women without vulvar pain |
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| Measure | Description | Time Frame |
|---|---|---|
| Pregnancy Rates | We will assess if women with vulvodynia experience different rates of pregnancy in comparison to women without such pain | data is collected at a single time point |
| Intentions to have children | We will assess how many women with vulvodynia wish to have children in their lifetime. | data is collected at a single time point |
| Fear of pregnancy/childbirth | We will assess if women with vulvodynia report higher levels of fear about pregnancy and childbirth in comparison to women without such pain. | data is collected at a single time point |
| Difficulties becoming pregnant | We will assess if women with vulvodynia experience more difficulties becoming pregnant in comparison to women without such pain. | data is collected at a single time point |
| Pregnancy/delivery complications | We will assess if women with vulvodynia experience more complications during pregnancy and delivery in comparison to women without such pain. | data is collected at a single time point. |
| Pregnancy/delivery methods | We will assess what methods women with vulvodynia use to become pregnant and deliver. | data is collected at a single time point |
| Symptom management during pregnancy | We will assess how women manage their vulvodynia symptoms during pregnancy. |
| Measure | Description | Time Frame |
|---|---|---|
| Course of vulvodynia | We will assess the course of vulvodynia after treatment is received from health care workers specializing in vulvar pain. | data is collected at a single time point |
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Inclusion Criteria:
Exclusion Criteria:
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The control group consists of a community sample. The vulvodynia group consists of women who have been diagnosed with vulvodynia/provoked vestibulodynia and who have been assessed and/or treated at 1 of 3 tertiary clinics:
1) Vulvar Pain Clinic (no longer active) located at the Women's Clinic, Willow Pavilion, Vancouver General Hospital; 2) Multidisciplinary Vulvodynia Program (MVP); or 3) BC Centre for Sexual Medicine
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| Name | Affiliation | Role |
|---|---|---|
| Lori A Brotto, PhD | University of British Columbia | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Diamond Health Care Centre, Vancouver Hospital | Vancouver | British Columbia | V5Z 1M9 | Canada |
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| Label | URL |
|---|---|
| University of British Columbia Sexual Health Lab website | View source |
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| ID | Term |
|---|---|
| D056650 | Vulvodynia |
| D010146 | Pain |
| ID | Term |
|---|---|
| D014845 | Vulvar Diseases |
| D005831 | Genital Diseases, Female |
| D052776 | Female Urogenital Diseases |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
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| data is collected at a single time point |
| Change of pain symptoms during and after pregnancy | We will assess if vulvodynia-related pain symptoms change during and after pregnancy. | data is collected at a single time point |
| D000091642 | Urogenital Diseases |
| D000091662 | Genital Diseases |
| D009461 | Neurologic Manifestations |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |