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The goal of this research study to learn about breast cancer survivorship and possible ways to improve breast cancer survivorship programs using technology.
Objectives:
Objective 1: Assess breast cancer survivors on the acceptability of and preferences for the integration of patient navigation and an eHealth technology platform to improve care in the Survivorship Clinic at Lyndon B. Johnson Hospital.
Objective 2: Assess clinic stakeholders acceptability of and preferences for the integration of patient navigation and an eHealth technology platform to improve care for breast cancer patients in the Survivorship Clinic at Lyndon B. Johnson Hospital.
Breast Cancer Survivors:
If patient agrees to take part in this study, they will visit the cancer survivorship clinic where the following tests and procedures will be performed:
All interviews will be audiorecorded. All audio recordings will be kept for 5 years and then destroyed. All interview data will be stored in password-protected computers and/or locked file cabinets. There will be no personal identifying information connected to patient's interview answers.
Length of Study:
All of the study procedures will take place at one visit. The visit should last about 60 minutes.
This is an investigational study.
Up to 40 participants will be enrolled in this study. All will be enrolled at LBJ General Hospital.
Clinic Stakeholders:
If clinic staff agree to take part in this study, the following tests and procedures will be performed:
All focus group sessions will be audiorecorded. All audio recordings will be kept for 5 years and then destroyed. All focus group data will be stored in password-protected computers and/or locked file cabinets. There will be no personal identifying information connected to your focus group answers.
Length of Study:
All of the study procedures will take place at one visit. The visit should last about 60 minutes.
This is an investigational study.
Up to 40 stakeholders will be enrolled in this study. All will be enrolled at LBJ General Hospital.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Breast Cancer Survivors | Patients in the LBJ General Hospital Cancer Survivorship Clinic. |
| |
| Clinic Stakeholders | Survivorship clinic stakeholders include clinic nurses, physicians, case managers, oncology patient navigators currently working with those in active treatment, information technology support professionals from the Harris County Hospital District (HCHD). |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Audio Recorded Interviews | Behavioral | Audio recorded interview at beginning of visit and after using HealthATM website. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Interview Study of Breast Cancer Survivorship Programs Using Technology | Breast cancer survivors and clinic staff surveys analyzed regarding acceptability of, and preferences for integration of patient navigation and an eHealth technology platform. Focus group and interview transcripts analyzed using ATLAS.ti qualitative analysis software. To analyze these data, constant comparative method used to conduct thematic analysis of transcribed data. As secondary check of breast cancer survivor data, calculation of descriptive statistics for measures administered to survivors following interview (frequencies, means, and standard deviations) including Patient Activation Measure and Systems Usability Scale. | 1 day |
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Inclusion Criteria:
Exclusion Criteria:
1) None
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Breast cancer survivors and stakeholders at LBJ General Hospital Cancer Survivorship Clinic in Houston, Texas
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| Name | Affiliation | Role |
|---|---|---|
| Susan Peterson, MPH, PhD | M.D. Anderson Cancer Center | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Lyndon B. Johnson Hospital | Houston | Texas | 77026 | United States |
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| Label | URL |
|---|---|
| University of Texas MD Anderson Cancer Center Website | View source |
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| ID | Term |
|---|---|
| D001943 | Breast Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D001941 | Breast Diseases |
| D012871 | Skin Diseases |
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| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| Focus Group Session | Behavioral | Focus group session taking 60-90 minutes. |
|
| Website Session | Other | 10-15 minute session with the HealthATM website. |
|
| Questionnaire | Behavioral | Questionnaire completion at end of audio recorded interview taking about 5 minutes. |
|
|
| D017437 |
| Skin and Connective Tissue Diseases |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |