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The objectives of our project are to: 1.) Develop a training program and manual for volunteers to implement evidence-based, non-pharmacological interventions for neuropsychiatric symptoms (NPS) of dementia in long-term care (LTC) settings; 2.) Recruit and train volunteers using the VALID program and pilot test the volunteer-led program with 20 individuals with Alzheimer's disease and NPS in a LTC facility in Kingston; and, 3.) Evaluate the effects of the VALID program on the symptoms of NPS, patient quality of life, volunteer's experience, and LTC staff stress.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| VALID Intervention | Experimental | Volunteers Adding Life in Dementia (VALID) Program |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Volunteers Adding Life in Dementia (VALID) Program | Behavioral | The VALID intervention will consist of 2 phases. First, volunteers will complete an assessment involving recording of a "Life Story" for each patient participant. This will include information on the patient's psychosocial history, occupational history, hobbies, interests and preferred activities using information from the LTC medical record and interviews with the patient and family members. Based on this information, a variety of potential psychosocial interventions will be developed for the individual with the assistance of the recreation therapist at the LTC. The second phase will involve implementation of the VALID intervention. Each individual with dementia will receive personalized pleasant activities for a minimum session of 30 minutes at a frequency of 3 times per week. One volunteer will complete the "Life Story" assessment and up to 3 volunteers may be involved with implementing the VALID program for each resident. |
| Measure | Description | Time Frame |
|---|---|---|
| Change in Cohen-Mansfield Agitation Inventory (CMAI) score | Baseline and 12 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Clinically significant reduction in agitation | 30% reduction in CMAI score | Baseline and 12 weeks |
| Remission of neuropsychiatric symptoms | CMAI score <40 |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Dallas P Seitz, MD | Queen's University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Extendicare Kingston | Kingston | Ontario | K7M6P4 | Canada |
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| ID | Term |
|---|---|
| D003704 | Dementia |
| D000544 | Alzheimer Disease |
| D001519 | Behavior |
| ID | Term |
|---|---|
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
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| ID | Term |
|---|---|
| D013016 | Sound |
| ID | Term |
|---|---|
| D011840 | Radiation, Nonionizing |
| D011827 | Radiation |
| D055585 | Physical Phenomena |
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|
| Baseline and 12 weeks |
| Change in Neuropsychiatric Inventory (NPI) score | Baseline and 12 weeks |
| Change in depression symptoms (Cornell Depression in Dementia Rating Scale) | Baseline and 12 weeks |
| Dementia Quality of Life (DemQoL) Scale | Baseline and 12 weeks |
| Clinical Global Impression of Change (CGI-C) | Baseline and 12 weeks |
| Use and dose of required medication | Baseline and 12 weeks |
| Short form health survey | Volunteer quality of life | Baseline and 12 weeks |
| Change in Modified Nursing Care Assessment Scale score | Assessing nursing stress. | Baseline and 12 weeks |
| D001523 | Mental Disorders |
| D024801 | Tauopathies |
| D019636 | Neurodegenerative Diseases |