Empowering Cancer Survivors Through Information Technology

Empowering Cancer Survivors Through Information Technology

This is a randomized controlled trial of a web-based informational intervention (UMFollowUp) for adolescent and young adult survivors of childhood cancer to improve cancer knowledge and psychosocial functioning.

Individuals randomly assigned to the control group will receive standard of care for the duration of their participation. This means they will continue to receive information regarding their diagnosis, treatments and ongoing health needs from their provider (no access to website).

Individuals randomly assigned to the treatment group will receive access to UMFollowUp, a secure, HIPAA-compliant website.

All participants will be asked to complete paper-and-pencil surveys at baseline and 9 months later to determine the impact of the web-based intervention.

Inclusion Criteria:

• History of diagnosis of hematologic malignancy or malignant neoplasm, and in disease free remission at time of recruitment.
• Must be English-speaking and have access to a computer with internet access, and must have completed treatment at University of Minnesota Medical Center-Fairview for cancer.

Exclusion Criteria:

• Individual with significant visual impairments and neurologic/cognitive difficulties which limit their ability to see and under our outcome questionnaires or website content will be excluded from participation.