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This is a before-after phase II study, according to the Medical Research Council framework, investigating the feasibility of introducing the Liverpool Care Pathway for the dying patient (LCP) in 5 Ligurian hospices.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| LCP Program | Other | The LCP Program is continuous quality improvement program of end-of-life care implemented in hospice |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| LCP Program | Other | The LCP Program is continuous quality improvement program of end-of-life care implemented in hospice |
|
| Measure | Description | Time Frame |
|---|---|---|
| feasibility of LCP implementation | measured as proportion of hospices that complete the experimental phase of introducing the LCP Program and maintain the program in the 6 months subsequent the process of experimental LCP implementation | 6 months after the end of LCP implementation |
| Measure | Description | Time Frame |
|---|---|---|
| quality of information provided to patients and to family | measured with the scale 1 (Informing and promoting shared decision making) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death | 2-4 months after the patient's death |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Massimo Costantini | IRCCS AOU San Martino- IST | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hospice ASL 4 | Chiavari | Genova | 16000 | Italy | ||
| Hospice Gigi Ghirotti "Albaro" |
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| ID | Term |
|---|---|
| D003643 | Death |
| ID | Term |
|---|---|
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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| Level of advanced care planning among patients | measured with the scale 2 (Encouraging advance care planning) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death | 2 - 4 months after the patient's death |
| Provision of care focusing on patient's individual needs. | measured with the scale 3 (Focus on individual) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death | 2 - 4 months after the patient's death |
| Quality of emotional support to family members before an after the patient's death | measured with the scale 4 (Attending to the emotional and spiritual needs of the family) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death | 2 - 4 months after the patient's death |
| Level of care coordination | measured with the scale 5 (Providing coordination of care) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death | 2 - 4 months after the patient's death |
| Family support levels | measured with the scale 6 (Supporting the self-efficacy of the family) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death | 2 - 4 months after the death of the patient |
| Appropriateness of therapeutic and diagnostic procedures | measured with a specific tool in which all diagnostic and therapeutic procedures and drugs administered to the patient during the last 3 days of life are reported | the last 3 days of life |
| Overall quality of care experience for patients and family | measured with the scale 7 (Overall quality of care provided to patients and family) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death | 2 - 4 months after the death of the patient |
| Quality of communication between General Practitioner and hospice | measured with a telephonic interview | an expected average of 2 months after the patient's death |
| Genova |
| 16000 |
| Italy |
| Hospice Gigi Ghirotti "Bolzaneto" | Genova | 16000 | Italy |
| Hospice ASL1 Liguria | Imperia | 18014 | Italy |
| CENTRO MISERICORDIA" SANTA M.G.ROSSELLO. Ist.Figlie Ns Signora Misericordia | Savona | 171000 | Italy |