A Multi-center, Longitudinal, Observational Study of Patients With Autosomal Dominant Polycystic Kidney Disease (ADPKD) to Establish the Rate, Characteristics, and Determinants of Disease Progression
A Multi-center, Longitudinal, Observational Study of Patients With Autosomal Dominant Polycystic Kidney Disease (ADPKD) to Establish the Rate, Characteristics, and Determinants of Disease Progression
To collect characteristics of patients with ADPKD across a broad population, over time to better understand disease progression (signs, symptoms and outcomes). Association with total kidney volume changes and other measures of disease progression will be determined in order to identify a population at increased risk for disease progression. The economic and quality life impact of ADPKD will be assessed. Subjects who terminated participation early from clinical trials with tolvaptan may also be followed.
Inclusion Criteria:
Exclusion Criteria:
Ciudad de Buenos Aires, C1155AHD, Argentina
Ciudad de Buenos Aires, C1431FWO, Argentina
Sante Fe, 3000, Argentina
Edmonton, Ontario T6G2B7, Canada
Sagamihara-shi, Kanagawa 252-0375, Japan
Hokkaido, 060-8638, Japan
Hospitalet de Ilobre, 08907, Spain
Balcali-Adana, 1330, Turkey (Türkiye)
Bornova-Izmir, 35100, Turkey (Türkiye)
Sihhiye-Ankara, 6100, Turkey (Türkiye)