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| Name | Class |
|---|---|
| Cancer Support Community, Research and Training Institute, Philadelphia | OTHER |
The investigators hypothesize that breast cancer survivors participating in a prosocial online support group will have a significantly lower mean level of psychological symptoms (anxiety/depression) and higher mean level of sense of purpose post-intervention than participants in a standard online support group.
Psychological distress is a significant problem among breast cancer survivors. Many survivors turn to the internet for information and support, yet few controlled studies have examined the effectiveness and safety of online support groups. The investigators are testing the potential efficacy, acceptability, and feasibility of an innovative theory-based online support group (OSG) for breast cancer survivors. Members of the control group will participate in a standard OSG that encourages self-expression. Members of the experimental condition will participate in a prosocial OSG that provides structured helping opportunities and coaching on how best to give support to others. Participants will complete two telephone interviews and six weekly online support group meetings.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Standard Online Support Group | Active Comparator |
| |
| Prosocial Online Support Group | Experimental |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| prosocial online support group | Behavioral | Six weekly 1.5 hour online support group meetings facilitated by a Cancer Support Community staff member. This online support group will maximize opportunities to provide help to others. |
| Measure | Description | Time Frame |
|---|---|---|
| Hospital Anxiety and Depression Scale | change from baseline to one month post-intervention |
| Measure | Description | Time Frame |
|---|---|---|
| Sense of Coherence measure | We are using the Meaningfulness/Purpose in Life subscale of the Sense of Coherence measure to assess sense of purpose. | change from baseline to one month post-intervention |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Stephen J Lepore, Ph.D. | Temple University | Principal Investigator |
| Joanne Buzaglo, Ph.D. | Cancer Support Community | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Temple University | Philadelphia | Pennsylvania | 19122 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 25403218 | Background | Lepore SJ, Buzaglo JS, Lieberman MA, Golant M, Greener JR, Davey A. Comparing standard versus prosocial internet support groups for patients with breast cancer: a randomized controlled trial of the helper therapy principle. J Clin Oncol. 2014 Dec 20;32(36):4081-6. doi: 10.1200/JCO.2014.57.0093. Epub 2014 Nov 17. | |
| 21867502 | Derived |
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| ID | Term |
|---|---|
| D001943 | Breast Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D001941 | Breast Diseases |
| D012871 | Skin Diseases |
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| Standard Online Support Group | Behavioral | Six weekly 1.5 hour online support group meetings facilitated by a Cancer Support Community staff member. This online support group will focus on encouraging self-expression. |
|
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| Lepore SJ, Buzaglo JS, Lieberman MA, Golant M, Davey A. Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial. BMC Cancer. 2011 Aug 25;11:379. doi: 10.1186/1471-2407-11-379. |
| D017437 |
| Skin and Connective Tissue Diseases |