Perceived Barriers to Patient Adherence After Pediatric Solid Organ Transplantation

Perceived Barriers to Patient Adherence After Pediatric Solid Organ Transplantation (CTOTC-05)

In this study, doctors will observe how and when pediatric patients who have received a solid organ transplant take their prescribed medication, and determining if there are reasons that keep these patients from taking all of their medicine.

Adhering to treatment regimens after solid organ transplantation is critical for the prevention of complications, including acute and chronic organ rejection. It is important to recognize the perceived barriers to following treatment regimens and identify ways to address these barriers early in the course of treatment.

Inclusion Criteria:

• Subject and/or guardian must be able to understand and provide informed consent/assent in English or Spanish
• Male or female primary solid organ transplant patients 0-21 years of age
• Recipients at least 1 month post-transplant hospital discharge

Exclusion Criteria:

• Inability or unwillingness of a participant or parent/guardian to give informed consent or comply with study protocol
• Condition or characteristic which in the opinion of the investigator makes the participant unlikely to complete the questionnaires
• Re-transplant recipient
• Multi-organ transplant recipient