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| ID | Type | Description | Link |
|---|---|---|---|
| HRSA R40MC19928-01-00 | Other Grant/Funding Number | HRSA |
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The purpose of this study is to see whether or not Family Navigators, who 1 ) help families after their child is diagnosed with autism and help them get autism specific services for their child 2) help families identify barriers to obtaining these services and 3) help families problem solve to overcome these barrier, are helpful to parents of a child newly diagnosed with an Autism Spectrum Disorder.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Family Navigator | Active Comparator | Family navigation |
|
| Standard Care | No Intervention | standard care |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Family Navigator | Other | Families in the intervention group will receive approximately six sessions with a Family Navigator. The Family Navigator will:
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| Measure | Description | Time Frame |
|---|---|---|
| Hours of Services | Mean number of autism-specific service hours received per week | 6 months after enrollment |
| Receipt of adequate services | As defined by 25 hours/week | 6 months after enrollment |
| Time to Receipt of Services | Difference between the date of the IEP/IFPS and date the child first received services | 6 months after enrollment |
| Measure | Description | Time Frame |
|---|---|---|
| Family Psychological Functioning |
| 6 months after enrollment |
| Family Psychological Functioning |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Marilyn Augustyn, MD | Boston Medical Center | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Boston Medical Center | Boston | Massachusetts | 02118 | United States |
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| ID | Term |
|---|---|
| D001321 | Autistic Disorder |
| D002658 | Developmental Disabilities |
| ID | Term |
|---|---|
| D000067877 | Autism Spectrum Disorder |
| D002659 | Child Development Disorders, Pervasive |
| D065886 | Neurodevelopmental Disorders |
| D001523 | Mental Disorders |
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| Baseline |