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| Name | Class |
|---|---|
| Agency for Healthcare Research and Quality (AHRQ) | FED |
| Cerner Corporation | UNKNOWN |
| The Institute for Patient- and Family-Centered Care | OTHER |
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Project Summary:
An electronic personal health record (ePHR) could maximize patient/clinician collaboration and consequently improve patient self-management and related health outcomes. The purpose of the proposed project is to examine the feasibility, acceptability, and impact of an ePHR that has been modified using a patient- and family-centered approach and incorporates the experiences, perspectives, and insights of patients and family members actually using the system. Comparison of patients with the ePHR intervention to a group of "care as usual" patients will be performed. The investigators Specific Aims are: (1) To improve the application of patient- and family-centered care elements in an existing ePHR, based on feedback from a pilot study of patients and their families. The modified ePHR will be tested in a pilot group of patients with hypertension and their families. (2) To implement and test the effectiveness of the modified ePHR with patients being treated for hypertension by a team of physicians, mid-level practitioners, nurse clinicians, and support staff in two ambulatory settings. Outcome measures will include patient activation and perception of care, quantifiable biological markers, patient-physician communication, and congruence of treatment with guidelines, particularly medication management; (3) To monitor the shift in provider and support staff awareness and incorporation of patient- and family-centered care as a result of implementation of the ePHR using questionnaires and focus groups. If successful, this ePHR could be implemented in additional locations in the Southeast.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Received personal health record | Experimental | received personal health record access |
|
| No personal health record | No Intervention | did not receive personal health record |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Electronic personal health record | Other |
|
| Measure | Description | Time Frame |
|---|---|---|
| Systolic blood pressure | 2 seated measures taken using manual sphygmometer by trained research associate | 9 months |
| Diastolic blood pressure | 2 seated measures taken using manual sphygmometer by trained research associate | 9 months |
| Measure | Description | Time Frame |
|---|---|---|
| patient activation | Patients complete the validated paper-and-pencil Patient Activation Measure (PAM) developed by Judy Hibbard. The instrument assesses the degree to which a patient is "activated," that is the degree to which they are an active agent in their own health care, e.g. ask questions of their health care provider. | 9 months |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Peggy J Wagner, PhD | Augusta University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Georgia Health Sciences University | Augusta | Georgia | 30912 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 22234404 | Derived | Wagner PJ, Dias J, Howard S, Kintziger KW, Hudson MF, Seol YH, Sodomka P. Personal health records and hypertension control: a randomized trial. J Am Med Inform Assoc. 2012 Jul-Aug;19(4):626-34. doi: 10.1136/amiajnl-2011-000349. Epub 2012 Jan 10. |
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| ID | Term |
|---|---|
| D006973 | Hypertension |
| ID | Term |
|---|---|
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
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| Patient satisfaction with care |
Consumer Assessment of Health care--group and clinician survey Patient assessment of chronic care Post study interviews |
| 9 months |
| adherence to guidelines | chart audit of patient care | 9 months |