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| Name | Class |
|---|---|
| Lund University | OTHER |
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Aim The overall aim was to investigate information needs after surgery for colorectal cancer and factors explaining information needs, both from the patients' perspective and the next of kin's.
Sample Inclusion criteria are patients over 18 years of age that have gone through a surgery for colorectal cancer without having a stoma, and their next of kin with whom they live.
Instruments In study I, 100 patients filled in four different instruments 1-2 weeks after discharge to measure: QOL, information needs, sense of coherence and performance status.
QLQ-C30 and QLQ-CR38 were used to measure QOL. INFO26 were used to measure received information. The SOC - Sense of Coherence was used to measure sense of coherence. And finally the scale for ECOG Performance Status was used to measure the level of physical performance status.
In study II the same patients filled in the same instruments a second time, 5-7 week after discharge.
Information about marital status, occupation, diagnosis and prognosis were taken from the medical record.
Interviews In study III 16 patients both filled in the instruments in study I and II, and were interviewed to gain a deeper understanding of their information needs. The interviews were semi structured and will be analysed with content analysis.
In study IV the next of kin to patients in study III were interviewed about their own information needs in connection to discharge.
The interviews were performed twice for each person, 1-2 weeks after discharge and a second time, 5-7 week after discharge.
Data sampling The data were collected consecutively, and every third patient living together with their next of kin were asked to participate in the interviews.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Surgery for colorectal cancer | Patients that had surgery for colorectal cancer without receiving a stoma, and their next of kin. |
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| Measure | Description | Time Frame |
|---|---|---|
| Information needs - patients' and next of kins' | In the interviews with patients and next of kins separately they are asked to express their needs for information at that time. | 7 weeks |
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Inclusion Criteria:
Exclusion Criteria:
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Inclusion criteria are patients over 18 years of age that have had a surgery for colorectal cancer without having a stoma, and their next of kin with whom they live. They should be able to speak and read Swedish.
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| Name | Affiliation | Role |
|---|---|---|
| Maria Lithner, RN | Surgical clinic, Lund, Sweden | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Surgical clinic | Helsingborg | Skåne County | 25187 | Sweden | ||
| Surgical clinic |
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| ID | Term |
|---|---|
| D015179 | Colorectal Neoplasms |
| ID | Term |
|---|---|
| D007414 | Intestinal Neoplasms |
| D005770 | Gastrointestinal Neoplasms |
| D004067 | Digestive System Neoplasms |
| D009371 | Neoplasms by Site |
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| Lund |
| Skåne County |
| 22185 |
| Sweden |
| Surgical clinic | Malmö | Skåne County | 20502 | Sweden |
| D009369 | Neoplasms |
| D004066 | Digestive System Diseases |
| D005767 | Gastrointestinal Diseases |
| D003108 | Colonic Diseases |
| D007410 | Intestinal Diseases |
| D012002 | Rectal Diseases |