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| Name | Class |
|---|---|
| National Health and Medical Research Council, Australia | OTHER |
| Sydney South West Area Health Service | OTHER_GOV |
| South West Sydney Local Health District | OTHER |
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This prospective observational study is designed to find out what treatment options new patients with chronic kidney disease learn about from their renal unit.
Aims: To determine the proportion of new CKD patients who receive information about treatment options prior to commencing dialysis, pre-emptive transplantation or conservative management. To determine the timing (i.e. patient's stage of disease) when information is given. To find out whether patients have a friend or family member with them when information is given.
Research Design and methods: This study is an assessment of CKD education practices. Nephrologists and pre-dialysis coordinators from each renal unit will complete questionnaires about information that was given to each new dialysis, pre-emptive transplant or conservatively managed patient that started treatment during a 3 month period.
Study hypothesis: Approximately one third of CKD patients will receive information after starting treatment. There will be a positive association between in-centre haemodialysis and later referral, non-English speaking background, and advancing age. Significance: The results from this national audit will provide Australian nephrologists and renal nurses with evidence about CKD education practices and compliance with clinical practice guidelines. The results may highlight opportunities for improvement in practice.
Additional research objectives and key research questions:
1. To determine the proportion of patients who receive information about: pre-emptive transplantation; peritoneal dialysis; home haemodialysis; centre based haemodialysis; supported non-dialytic care or conservative management.
3. To determine the proportion of incident patients that have a non-English speaking background (NESB) requiring an interpreter or translated materials.
4. To examine associations between age, gender, health insurance status, NESB, CKD stage and information provided on initial treatment commenced.
5. To determine the proportion of patients who choose not to dialyse.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Stage 5 chronic kidney disease | Incident patients commencing renal replacement therapy or conservative care |
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| Measure | Description | Time Frame |
|---|---|---|
| Proportion of incident Stage 5 CKD patients who receive information about their treatment options prior to commencing treatment | Time prior to commencement of treatment. eg. 3 months |
| Measure | Description | Time Frame |
|---|---|---|
| Stage of CKD (based on eGFR) when information about treatment options is first given | one time point prior to commencement of treatment | |
| Patient and unit characteristics associated with commencing renal replacement therapy versus conservative care | One time point based on commencement date of first treatment |
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Inclusion Criteria:
Exclusion Criteria:
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Adults and children with chronic kidney disease attending renal treatment centres in Australian public hospitals and private practices.
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| Name | Affiliation | Role |
|---|---|---|
| Kirsten Howard, PhD | University of Sydney | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Sydney | Sydney | New South Wales | 2006 | Australia |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 20931747 | Background | Morton RL, Howard K, Webster AC, Snelling P. Patient information about options for treatment: Methods of a national audit of information provision in chronic kidney disease. Nephrology (Carlton). 2010 Sep;15(6):649-52. doi: 10.1111/j.1440-1797.2010.01340.x. | |
| 20819955 | Result | Morton RL, Howard K, Webster AC, Snelling P. Patient INformation about Options for Treatment (PINOT): a prospective national study of information given to incident CKD Stage 5 patients. Nephrol Dial Transplant. 2011 Apr;26(4):1266-74. doi: 10.1093/ndt/gfq555. Epub 2010 Sep 6. |
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| ID | Term |
|---|---|
| D051436 | Renal Insufficiency, Chronic |
| ID | Term |
|---|---|
| D051437 | Renal Insufficiency |
| D007674 | Kidney Diseases |
| D014570 | Urologic Diseases |
| D052776 | Female Urogenital Diseases |
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| D005261 |
| Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
| D052801 | Male Urogenital Diseases |
| D002908 | Chronic Disease |
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |