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This two-part research study will compare childhood cancer survivors receiving specialized follow-up care in the REACH for Survivorship clinic to patients receiving routine follow-up care.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Routine Patient Care |
| ||
| Previously-enrolled REACH Clinic Patients |
| ||
| New REACH Clinic Patients |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| interview | Other |
|
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| Measure | Description | Time Frame |
|---|---|---|
| Knowledge gained by attending a multispecialty Survivorship Clinic which will be measured by comparison of self report with medical record data in both cross-sectional and longitudinal approach. | In addition to data from patient interviews, a review of medical records will include general patient demographic data as well as data regarding cancer diagnosis, treatment and ongoing follow-up care. | 12 months |
| Measure | Description | Time Frame |
|---|---|---|
| Characterizing how the initial consultation in a specialized clinic impacts childhood cancer survivors' knowledge of their cancer diagnosis, treatment, and risk of late effects by comparing patient's understanding among 3 sampled timepoints. | pre-clinic and a post-clinic interviews at 1 and 3 months. | |
| An analysis of differences in relative levels of recommended screening for late effects that childhood cancer survivors have received based on the type of their long-term follow-up care comparing medical records against Survivorship Care Plan. |
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Inclusion Criteria:
Exclusion Criteria:
-Patients who have received a bone marrow transplant
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Fifty new cancer patients in the REACH for Survivorship clinic, fifty returning cancer patients in the REACH for Survivorship clinic, and one hundred routine care cancer patients are expected to enroll in this study.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Vanderbilt-Ingram Cancer Center | Nashville | Tennessee | 37232 | United States |
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| clinic visit and interview | Other |
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| interviews and clinic visit | Other |
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Scored responses will allow for quantitative analysis of differences within and between the cohorts of patients |
| 12 months |
| A qualitative evaluation of program feedback will serve to improve the care provided in the REACH for Survivorship clinic | This data will be evaluated qualitatively for trends. | 12 months |
| ID | Term |
|---|---|
| D009369 | Neoplasms |
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| ID | Term |
|---|---|
| D007407 | Interviews as Topic |
| D000553 | Ambulatory Care |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |
| D005791 | Patient Care |
| D013812 | Therapeutics |
| D006296 | Health Services |
| D005159 | Health Care Facilities Workforce and Services |
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