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When a clinician gives an autism spectrum disorder (ASD) diagnosis they hope this will be helpful to the person receiving it and their family. In reality children with an ASD describe few benefits to receiving this diagnosis - they often report feeling confused and stigmatised by it. Parents can also struggle to understand their child's diagnosis and report needing greater support from professionals in this respect (Midence & O'neill, 1999; Osborne & Reed, 2008).
Little is known about how to help children and families integrate their ASC 'label' in a positive way. Whilst there is anecdotal evidence that psychoeducation after diagnosis can help, there has been no formal evaluation of this approach and no evidence-based programmes of this type are available. In the current study the investigators aim to test empirically a psychoeducational programme for children with an ASD ('PEGASUS'), using a randomised controlled design. The investigators aim to evaluate whether this psychological and educational intervention impacts positively upon understanding of ASC, self-esteem, functional adaption, well-being and family functioning.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| PEGASUS | Experimental | PEGASUS - a psychoeducational group intervention with parallel parent and child sessions. |
|
| Placebo | No Intervention | Will receive managment as usual from their local educational and NHS services |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| PEGASUS | Behavioral | PEGASUS - a psychoeducational group intervention with parallel parent and child sessions. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Autism Knowledge Questionnaire | All measures taken at baseline, termination of treatment and six months follow-up. | 30 months |
| Child Behaviour Checklist | All measures taken at baseline, termination of treatment and six months follow-up. | 30 months |
| Vineland-II, Rosenburg Self-Esteem Scale | All measures taken at baseline, termination of treatment and six months follow-up. | 30 months |
| Parenting Stress index | All measures taken at baseline, termination of treatment and six months follow-up. | 30 months |
| Measure | Description | Time Frame |
|---|---|---|
| Qualitative interview conducted at baseline and termination. | 30 months |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| William Mandy, Dr | Contact | w.mandy@ucl.ac.uk |
| Name | Affiliation | Role |
|---|---|---|
| William Mandy, Dr | Institute of Child Health | Study Director |
| David Skuse, Professor | Institute of Child Health | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Institute of Child Health | London | WC1N 1EH | United Kingdom |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 25132516 | Derived | Gordon K, Murin M, Baykaner O, Roughan L, Livermore-Hardy V, Skuse D, Mandy W. A randomised controlled trial of PEGASUS, a psychoeducational programme for young people with high-functioning autism spectrum disorder. J Child Psychol Psychiatry. 2015 Apr;56(4):468-76. doi: 10.1111/jcpp.12304. Epub 2014 Aug 1. |
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| ID | Term |
|---|---|
| D000067877 | Autism Spectrum Disorder |
| ID | Term |
|---|---|
| D002659 | Child Development Disorders, Pervasive |
| D065886 | Neurodevelopmental Disorders |
| D001523 | Mental Disorders |
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