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The study seeks to gain knowledge about new and of alternative ways of organizing ostomy training based on informants' own experiences of life with a stoma.
The study is designed and conducted as qualitative focus group interviews with three different groups of patients with enterostomas (5-8 in each group): a) people with permanent enterostoma due to cancer, 2) people with permanent enterostoma due to non-cancer and 3) people with a temporary ileostomy.
The study is investigating the perspective of the patients who have actually experienced having surgery and living with an enterostoma.
By applying this method it is possible to gain access and in depth knowledge of complex issues including sensitive data. The dialogue with peers can lead to experiments and associations which might stimulate the informants to produce new insights within the individual and in the group.
The interviews will be transcribed in full and analyzed with qualitative content analysis with a phenomenological and hermeneutical approach
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| Measure | Description | Time Frame |
|---|---|---|
| Educational elements and themes that will optimize rehabilitation and patient education | Illumination and discussion of informants´ perspective on rehabilitation and patient education will | up until 10 months from interview |
| Measure | Description | Time Frame |
|---|---|---|
| Identification of strategies for improving quality of life | Illumination and discussion of informants perspective on the influence of an enterostoma on their lives | up until 10 months from interview |
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Inclusion Criteria:
Exclusion Criteria:
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Department of surgery
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| Name | Affiliation | Role |
|---|---|---|
| Anne K. Danielsen, Nurse, MaClN | Herlev University Hospital, department of surgery | Principal Investigator |
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| ID | Term |
|---|---|
| D000079102 | Empowerment |
| ID | Term |
|---|---|
| D012919 | Social Behavior |
| D001519 | Behavior |
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