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The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.
A mere subset of the reasons behind unmet health care literacy needs include the health care systems' increasing complexity, increased time constraints, profound treatment decision making requirements, decreased financial resources, fracturing social networks and diversifying educational and cultural needs.
This project will use focus groups to explore the factors involved in brain cancer health care literacy from the perspectives of patients and those involved in their care. Hypothesis generated from this project will be directly applied toward future projects. The overarching goals are improved access and adequacy of health care literacy information through the eventual development of validated, useful, reliable health care literacy information tools for brain cancer patients and those involved in their care.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Brain Tumor Patient | A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a "saturation" of themes has been identified. |
| |
| Health Care Provider | A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a "saturation" of themes has been identified. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Focus Group | Other | A single focus group will be held until a "saturation" of themes has been identified. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Explore the factors involved in health care literacy from the perspective of brain cancer patients. | An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions. | 1 Year |
| Measure | Description | Time Frame |
|---|---|---|
| Explore the factors involved in health care literacy from the perspective of health care providers. | An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions. | 1 Year |
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Inclusion Criteria:
BRAIN TUMOR PATIENTS:
HEALTH CARE PROVIDERS:
Exclusion Criteria:
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Participants will be recruited during routine interactions with the investigators.
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| Name | Affiliation | Role |
|---|---|---|
| Erin M Dunbar, MD | University of Florida | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Florida | Gainesville | Florida | 32610 | United States |
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| ID | Term |
|---|---|
| D001932 | Brain Neoplasms |
| ID | Term |
|---|---|
| D016543 | Central Nervous System Neoplasms |
| D009423 | Nervous System Neoplasms |
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
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| ID | Term |
|---|---|
| D017144 | Focus Groups |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| D001927 |
| Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |