Xeroderma Pigmentosum Patient Experiences

Xeroderma Pigmentosum: A Survey of Patient Experiences

Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.

Inclusion Criteria:

• Confirmed diagnosis of xeroderma pigmentosum
• Any age
• Access to a public or private computer

Exclusion Criteria:

• Patients who do not have a confirmed diagnosis of XP
• Patients under 18 who do not have a parent/guardian able to read or speak English
• Patients who are unable to read or speak English