Validation of the Sickle Cell Disease Pain Burden Interview

The purpose of this study is to validate a brief survey tool, the SCD Pain Burden Interview (SCPBI), which can be used in the clinical and/or research settings to assess the impact of pain on children with sickle cell disease.

Inclusion Criteria:

• Documented sickle cell disease
• 7 years old or greater
• Primary caregiver present at the first visit for children < 18 years of age

Exclusion Criteria:

• Primary language spoken other than English
• Patient is in acute pain episode at time of initial visit