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The purpose of this study is to develop and implement evidence-based and family-oriented support for young carers and their families in Germany. Hypothesis is that families' own support mechanisms, combined with externally provided support that is determined by the families' specific needs, will help to overcome their burden and enable families to live in the way they wish to despite chronic illness. This will lead to a measurable increase in HRQOL of children concerned.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| 1 | Experimental | intervention group |
|
| 2 | No Intervention | waiting group |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| support service | Other |
|
| Measure | Description | Time Frame |
|---|---|---|
| health-related Quality of Life in children | study start and after 5 month of intervention |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Sabine Metzing-Blau, Dr. | Contact | 00492302926 | 377 | smetzing@uni-wh.de |
| Joerg grosse Schlarmann, MScN | Contact | 00492302926 | 377 | schlarmann@uni-wh.de |
| Name | Affiliation | Role |
|---|---|---|
| Sabine Metzing-Blau, Dr. | Institute of Nursing Science; Witten/Herdecke University | Principal Investigator |
| Wilfried Schnepp, Prof.Dr. | Institute of Nursing Science; Witten/Herdecke University | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Institute of Nursing Science | Witten | North Rhine-Westphalia | 58453 | Germany |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 18357746 | Background | Metzing S, Schnepp W. [The impact of caring on young carer's lives. An international literature review (1990-2006)]. Pflege. 2007 Dec;20(6):331-6. doi: 10.1024/1012-5302.20.6.331. German. | |
| 18357745 | Background | Sabine M, Schnepp W. [Children and adolescents as caregivers: who they are and what they do. An international literature review (1990-2006)]. Pflege. 2007 Dec;20(6):323-30. doi: 10.1024/1012-5302.20.6.323. German. |
| Label | URL |
|---|---|
| Website of the study | View source |
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| ID | Term |
|---|---|
| D002908 | Chronic Disease |
| ID | Term |
|---|---|
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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| 19091099 | Background | Schlarmann JG, Metzing-Blau S, Schnepp W. The use of health-related quality of life (HRQOL) in children and adolescents as an outcome criterion to evaluate family oriented support for young carers in Germany: an integrative review of the literature. BMC Public Health. 2008 Dec 17;8:414. doi: 10.1186/1471-2458-8-414. |
| 22135716 | Derived | Schlarmann JG, Metzing S, Schoppmann S, Schnepp W. Germany's First Young Carers Project's Impact on the Children: Relieving the Entire Family. A Qualitative Evaluation. Open Nurs J. 2011;5:86-94. doi: 10.2174/1874434601105010086. Epub 2011 Oct 26. |