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The purpose of this study is to determine how health literacy impacts glaucoma patient adherence (as measured by following up with the doctor) in Tamil Nadu, India. We hypothesize that individuals with better health literacy will have higher rates of follow-up with their ophthalmologist.
Many studies have shown the importance of health literacy on patient adherence in the United States (Juzych, M, et al., 2008; Muir, KW, et al., 2006). Low adherence in glaucoma patients leads to increased intraocular pressure, optic nerve damage, and blindness. To date, no research has been done with health literacy and patient adherence in the developing world.
We will use TOFHLA and REALM to assess the health literacy of glaucoma patients in Tamil Nadu, India. We will also survey other demographic information and patient knowledge of glaucoma. This information will be compared with follow-up rates to identify barriers to patient adherence.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| 1 | Adequate Health Literacy (as determined by TOFHLA) | ||
| 2 | Inadequate Health Literacy (as determined by TOFHLA) |
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| Measure | Description | Time Frame |
|---|---|---|
| Association between TOFHLA and REALM and the probability of return for follow-up visit | 1 year from enrollemnt |
| Measure | Description | Time Frame |
|---|---|---|
| Association between religion, caste, education, socio-economic status, employment, and available time for doctor visits and the probability of return for follow-up visit. | 1 year from enrollment | |
| Association between marital status, number of dependents, family history of glaucoma, travel, need for an escort, understanding of glaucoma, and paying status and the probability of return for follow-up visit. |
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Inclusion Criteria:
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Glaucoma Patients from Aravind Eye Hospital at Madurai, Tamil Nadu, India
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| Name | Affiliation | Role |
|---|---|---|
| Benjamin R Curran, BS | Loyola University Chicago, Stritch School of Medicine | Principal Investigator |
| Alan L Robin, MD | University of Maryland; Johns Hopkins University, Wilmer Institute and Bloomberg School of Public Health | Study Director |
| Ramaswami Krishnadas, DO, DNB | Aravind Eye Hospital, CMO | Study Director |
| Scott D Smith, MD, MPH | The Cleveland Clinic | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Aravind Eye Hospital | Madurai | Tamil Nadu | 625 020 | India |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 18474786 | Background | Juzych MS, Randhawa S, Shukairy A, Kaushal P, Gupta A, Shalauta N. Functional health literacy in patients with glaucoma in urban settings. Arch Ophthalmol. 2008 May;126(5):718-24. doi: 10.1001/archopht.126.5.718. | |
| 16876500 | Background | Muir KW, Santiago-Turla C, Stinnett SS, Herndon LW, Allingham RR, Challa P, Lee PP. Health literacy and adherence to glaucoma therapy. Am J Ophthalmol. 2006 Aug;142(2):223-6. doi: 10.1016/j.ajo.2006.03.018. |
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| ID | Term |
|---|---|
| D010349 | Patient Compliance |
| D005901 | Glaucoma |
| ID | Term |
|---|---|
| D010342 | Patient Acceptance of Health Care |
| D000074822 | Treatment Adherence and Compliance |
| D015438 | Health Behavior |
| D001519 | Behavior |
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| 1 year from enrollment |
| 18321582 | Background | Friedman DS, Hahn SR, Gelb L, Tan J, Shah SN, Kim EE, Zimmerman TJ, Quigley HA. Doctor-patient communication, health-related beliefs, and adherence in glaucoma results from the Glaucoma Adherence and Persistency Study. Ophthalmology. 2008 Aug;115(8):1320-7, 1327.e1-3. doi: 10.1016/j.ophtha.2007.11.023. Epub 2008 Mar 5. |
| D009798 | Ocular Hypertension |
| D005128 | Eye Diseases |